Chris Cooper and Company - Managing the Cost of Terminal Illness, Part 3: Consider Palliative Care:
What Is Palliative Care? | 18 March 2013
Palliative care is an approach to medical treatment that involves taking steps to relieve pain and improve quality of life for people with serious illnesses (such as AIDS, cancer, Alzheimer's disease or Parkinson's disease). Unlike hospice care, which is specifically for people who are close to death, palliative care is for anyone with a serious illness. And it doesn't take the place of more traditional treatments—it simply offers additional services (such as help with pain, insomnia, nausea or other symptoms) in coordination with traditional care. Typically, it involves a team approach, with doctors, nurses, social workers/counselors, and perhaps even clergy members and nutritionists working together to help the patient. Palliative care considers a patient's physical health along with their emotional and spiritual needs.
While the term palliative care is relatively new, this approach to treatment has actually been around for decades and is offered by many hospitals. And there's evidence that patients who receive this type of care enjoy better quality of life. One study found that people who had advanced lung cancer and received palliative care lived longer and required less chemotherapy and hospitalization.
How To Use the Alzheimer's Reading Room Knowledge Base | Alzheimer's Reading Room
How To Use the Alzheimer's Reading Room Knowledge Base | Alzheimer's Reading Room: How To Use the Alzheimer's Reading Room Knowledge Base
The Alzheimer's Reading Room Knowledge Base contains more than 4,000 articles. In the Alzheimer's Reading Room (ARR), we offer "real life" solutions to problems that Alzheimer's caregivers and their families encounter each day.
By Bob DeMarco
Alzheimer's Reading Room
How To Use the Alzheimer's Reading Room Knowledge Base
The goal of the Alzheimer's Reading Room is to Educate, Empower, and sometimes Entertain Alzheimer's caregivers, their families, and the entire Alzheimer's community.
At its core the Alzheimer's Reading Room is about helping members of the Alzheimer's and Dementia Community understand, cope, and communicate with persons living with Alzheimer's and Dementia.
The Alzheimer's Reading Room is currently the number one source of information for Alzheimer's, dementia, memory loss, and related health and life news on the Internet.
Subscribe to the Alzheimer's Reading Room
Email:
You can access the Alzheimer's Reading Room Knowledge Base by using the search box that is available on every page on this website.
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The Alzheimer's Reading Room Knowledge Base contains more than 4,000 articles. In the Alzheimer's Reading Room (ARR), we offer "real life" solutions to problems that Alzheimer's caregivers and their families encounter each day.
By Bob DeMarco
Alzheimer's Reading Room
How To Use the Alzheimer's Reading Room Knowledge Base
The goal of the Alzheimer's Reading Room is to Educate, Empower, and sometimes Entertain Alzheimer's caregivers, their families, and the entire Alzheimer's community.
At its core the Alzheimer's Reading Room is about helping members of the Alzheimer's and Dementia Community understand, cope, and communicate with persons living with Alzheimer's and Dementia.
The Alzheimer's Reading Room is currently the number one source of information for Alzheimer's, dementia, memory loss, and related health and life news on the Internet.
Subscribe to the Alzheimer's Reading Room
Email:
You can access the Alzheimer's Reading Room Knowledge Base by using the search box that is available on every page on this website.
---
Bob DeMarco
Founder, Alzheimer's Reading Room
From Grief Comes A Mission To Make Estate Planning Less Daunting : NPR
From Grief Comes A Mission To Make Estate Planning Less Daunting : NPR:
Estate planning may seem like a pain, but imagine the mess you leave to those managing your affairs if you don't draw up a will or get life insurance.
"It takes really just a few hours now, rather than a pile of hours and thousands of dollars to do it later when you really need it done," says Chanel Reynolds, who created a website geared to help people get their affairs in order.
Her site — which is a NSFW riff on "get your stuff together" — features a checklist and templates for some key documents, including a will, living will and power of attorney. It also suggests compiling online account usernames and passwords and putting these key documents in a safe or scanning and uploading them to a password-protected site.
Reynolds also suggests setting aside emotional items like photos of yourself, "so that when you're gone people can touch them and hold them and feel them and remember you as well."
For wills, Reynolds notes that lawyers can help, but there are also affordable online software options. "I didn't realize that creating a will, you don't need a lawyer to do it for you," she says. "In most states you need two witnesses and/or someone to notarize it. And it can save your family weeks and weeks and hundreds of hours of pain and confusion and legal costs that you probably can't afford."
Estate planning may seem like a pain, but imagine the mess you leave to those managing your affairs if you don't draw up a will or get life insurance.
"It takes really just a few hours now, rather than a pile of hours and thousands of dollars to do it later when you really need it done," says Chanel Reynolds, who created a website geared to help people get their affairs in order.
Her site — which is a NSFW riff on "get your stuff together" — features a checklist and templates for some key documents, including a will, living will and power of attorney. It also suggests compiling online account usernames and passwords and putting these key documents in a safe or scanning and uploading them to a password-protected site.
Reynolds also suggests setting aside emotional items like photos of yourself, "so that when you're gone people can touch them and hold them and feel them and remember you as well."
For wills, Reynolds notes that lawyers can help, but there are also affordable online software options. "I didn't realize that creating a will, you don't need a lawyer to do it for you," she says. "In most states you need two witnesses and/or someone to notarize it. And it can save your family weeks and weeks and hundreds of hours of pain and confusion and legal costs that you probably can't afford."
ADvancing Care Newsletter | alz.org/nyc
ADvancing Care Newsletter | alz.org/nyc:
Alzheimer's Association, New York City Chapter
360 Lexington Avenue., Fl. 4, New York, NY 10017
Alzheimer's Association is a not-for-profit 501(c)(3) organization.
Alzheimer's Association, New York City Chapter
360 Lexington Avenue., Fl. 4, New York, NY 10017
Alzheimer's Association is a not-for-profit 501(c)(3) organization.
Culture change towards person-centred care in Canada
Culture change towards person-centred care: Culture change towards person-centred care in Canada
Person-centred care of people with dementia living in care homes: Executive summary
The Alzheimer Society believes that people with dementia have the right to enjoy the highest possible quality of life and quality of care. The Society believes that each person with dementia is an individual, regardless of the stage of the disease, and that care should be individually tailored to their unique needs, interests, habits and desires.
To achieve this goal, the Alzheimer Society of Canada looked for evidence-based research that shows how to successfully implement person-centred programs and practices in long-term care homes. The result of this research is the Guidelines for care: Person-centred care of people with dementia living in care homes framework, which includes the input of peop
le with dementia, family caregivers, researchers, educators, long-term care home staff, and various stakeholders.
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Alzheimer Society of Canada
20 Eglinton Avenue West, 16th Floor,
Toronto, Ontario, M4R 1K8
Tel: 416-488-8772 Fax: 416-322-6656
Toll-free: 1-800-616-8816
Email: info@alzheimer.ca
Person-centred care of people with dementia living in care homes: Executive summary
The Alzheimer Society believes that people with dementia have the right to enjoy the highest possible quality of life and quality of care. The Society believes that each person with dementia is an individual, regardless of the stage of the disease, and that care should be individually tailored to their unique needs, interests, habits and desires.
To achieve this goal, the Alzheimer Society of Canada looked for evidence-based research that shows how to successfully implement person-centred programs and practices in long-term care homes. The result of this research is the Guidelines for care: Person-centred care of people with dementia living in care homes framework, which includes the input of peop
Guidelines for care
The Guidelines for care framework consists of the following sections:- What does a person-centred philosophy mean?
- What does person-centred care look like in a care home?
le with dementia, family caregivers, researchers, educators, long-term care home staff, and various stakeholders.
---
Alzheimer Society of Canada
20 Eglinton Avenue West, 16th Floor,
Toronto, Ontario, M4R 1K8
Tel: 416-488-8772 Fax: 416-322-6656
Toll-free: 1-800-616-8816
Email: info@alzheimer.ca
Massachusetts | Consumer and Provider Service Organizations
Resource List
The Official Website of the Executive Office of Health and Human Services (EOHHS)
This is a partial listing of frequently used resources. When contacting any of the organizations listed below, be sure to ask if they have suggestions about additional resources you may want to contact.
Division of Health Care Quality
Telephone: (617) 753-8000
Survey Tool Information: (617) 753-8000
Web Site: http://www.mass.gov/dph/dhcq
Massachusetts Executive Office of Elder Affairs
General Information & Referral Assistance (9am-5pm)
Telephone: (617) 727-7750 or 1-800-882-2003
(24 hours) 1-800-882-2275
Web Site: http://www.mass.gov/elder
The Massachusetts Commission on End of Life Care
250 Washington St
4th Floor
Boston, MA 02108
Phone:617-624-5437
Fax: 617-624-5075
Web Site: http://www.endoflifecommission.org
MassHealth
Client Services, Medicaid Eligibility
Telephone: (617) 210-5000
Web Site: http://www.mass.gov/masshealth
Massachusetts Division of Insurance
Consumer Services Section
Information on Long-Term Care Insurance
Telephone: (617) 521-7777
Web Site: http://www.mass.gov/doi/
Massachusetts Office of the Attorney General
Consumer Protection Division
Telephone: (617) 727-8400
Web Site: http://www.mass.gov/ago
Telephone: (617) 494-5150
Helpline: 1-800-548-2111
Massachusetts Aging Services Association, Inc.
Telephone: (617) 739-3235
Web Site: http://www.massaging.org/
Living is for the Elderly (LIFE) Nursing Home Resident Advocacy Group
Telephone: (781) 646-1000 ext. 4733
Massachusetts Senior Care Association
Telephone: (617) 558-0202
Web Site: www.maseniorcare.org
Massachusetts Elderline
General Consumer Information on Free Prescription Drug Program and
Services for the Elderly
Telephone: 1-800-AGE-INFO
Hospice Federation of Massachusetts
Telephone: (781) 225-7077
Web Site: http://www.hospicefed.org
This information is provided by the Division of Health Care Quality within the Department of Public Health.
Government Agencies
Massachusetts Department of Public HealthDivision of Health Care Quality
Telephone: (617) 753-8000
Survey Tool Information: (617) 753-8000
Web Site: http://www.mass.gov/dph/dhcq
Massachusetts Executive Office of Elder Affairs
General Information & Referral Assistance (9am-5pm)
Telephone: (617) 727-7750 or 1-800-882-2003
(24 hours) 1-800-882-2275
Web Site: http://www.mass.gov/elder
The Massachusetts Commission on End of Life Care
250 Washington St
4th Floor
Boston, MA 02108
Phone:617-624-5437
Fax: 617-624-5075
Web Site: http://www.endoflifecommission.org
MassHealth
Client Services, Medicaid Eligibility
Telephone: (617) 210-5000
Web Site: http://www.mass.gov/masshealth
Massachusetts Division of Insurance
Consumer Services Section
Information on Long-Term Care Insurance
Telephone: (617) 521-7777
Web Site: http://www.mass.gov/doi/
Massachusetts Office of the Attorney General
Consumer Protection Division
Telephone: (617) 727-8400
Web Site: http://www.mass.gov/ago
Consumer and Provider Service Organizations
Alzheimer's Association of Eastern MassachusettsTelephone: (617) 494-5150
Helpline: 1-800-548-2111
Massachusetts Aging Services Association, Inc.
Telephone: (617) 739-3235
Web Site: http://www.massaging.org/
Living is for the Elderly (LIFE) Nursing Home Resident Advocacy Group
Telephone: (781) 646-1000 ext. 4733
Massachusetts Senior Care Association
Telephone: (617) 558-0202
Web Site: www.maseniorcare.org
Massachusetts Elderline
General Consumer Information on Free Prescription Drug Program and
Services for the Elderly
Telephone: 1-800-AGE-INFO
Hospice Federation of Massachusetts
Telephone: (781) 225-7077
Web Site: http://www.hospicefed.org
This information is provided by the Division of Health Care Quality within the Department of Public Health.
Complementary Content
Massachusetts Home Care Program | Executive office of Elder Affairs in coordination with Aging Services Access Points (ASAPs),
Home Care Program Overview
Home Care Program Overview
The Massachusetts Home Care Program provides support services to elders with daily living needs to help maintain independent community living. Services are designed to encourage independence and ensure dignity. The program also supports families caring for elders in order to encourage and relieve ongoing care giving responsibilities. The Home Care Program is administered by the Executive office of Elder Affairs in coordination with Aging Services Access Points (ASAPs), located in communities throughout the Commonwealth of Massachusetts. The program provides homemaker, personal care, day care, home delivered meals, transportation, and an array of other community support services to help elders remain in their homes. The ASAP conducts comprehensive needs assessments to determine eligibility for the Home Care Program as well as other programs and services as appropriate. An individualized service plan is developed with the elder and his/her family. On an ongoing basis, the ASAP conducts reassessments and monitors services for quality.
Eligibility for the Home Care Program is based on age (60 years or older or under 60 with a diagnosis of Alzheimer's disease and in need or respite services), financial status, and ability to carry out daily tasks such as bathing, dressing, and meal preparation.
FIL 2 2-3 ADL impairments
FIL 3 6-10 ADL/IADL impairments
Eligibility for the Home Care Program is based on age (60 years or older or under 60 with a diagnosis of Alzheimer's disease and in need or respite services), financial status, and ability to carry out daily tasks such as bathing, dressing, and meal preparation.
Eligibility for the Home Care Program
Age
60 years or older or under 60 with a diagnosis of Alzheimer's disease and in need of respite servicesCodes
Functional Impairment Levels (FIL) - Activities of Daily Living (ADLs) - Instrumental Activities of Daily Living (IADLs)Uniform Intake
Functional Impairment Level (FIL) 1-3, with critical unmet needsFunctional Impairment Levels
FIL 1 4-7 ADL impairmentsFIL 2 2-3 ADL impairments
FIL 3 6-10 ADL/IADL impairments
- Activities of Daily Living (ADLs) include bathing, dressing, eating, toileting, continence, transferring, and mobility
- Instrumental Activities of Daily Living (IADLs) include meal preparation, shopping, laundry, managing money, housework, transportation, use of telephone, outdoor mobility, and taking medicine
- Critical Unmet Needs include ADLs, meal preparation, shopping, medical transportation, and need for home health services or respite care
Financial
MassHealth members are financially eligible. Income guidelines require Annual Gross Income less than $24,838/single and 35,145/couple.Monthly Co-Payments
- $9-$130 for individuals with incomes that range from $10,924-$24,837
- $17-$140 for couples with incomes that range from $14,646-$35,144
Respite Over-Income Scale
- 50%-100% of cost of services
Marie Marley Author, 'Grandma Doesn't Know My Name!' Helping Your Child Cope with Alzheimer's
brochure_childrenteens.pdf (application/pdf Object)
The Alzheimer's Association has published a brochure for parents that lists the following behaviors children may exhibit if they are having a hard time understanding or accepting the disease:
This is an official publication of the Alzheimer's Association but may be distributed by unaffiliated organizations and individuals. Such distribution does not constitute an endorsement of these parties or their activities by the Alzheimer's Association. For information and support, contact the Alzheimer's Association: 800.272.3900 alz.org
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Marie Marley
Children can be deeply affected when a beloved grandparent develops Alzheimer's disease. They may become afraid, confused, sad, angry, frustrated, guilty, worried, or embarrassed -- just to name a few potential feelings. Although each child reacts differently, there are some common fears:
1. The grandparent doesn't love them anymore
2. Their grandparent may be crazy
3. It's their fault that their grandparent is sick
4. They may catch the disease
5. Their parent(s) may get it
The Alzheimer's Association has published a brochure for parents that lists the following behaviors children may exhibit if they are having a hard time understanding or accepting the disease:
This is an official publication of the Alzheimer's Association but may be distributed by unaffiliated organizations and individuals. Such distribution does not constitute an endorsement of these parties or their activities by the Alzheimer's Association. For information and support, contact the Alzheimer's Association: 800.272.3900 alz.org
----
Marie Marley
Children can be deeply affected when a beloved grandparent develops Alzheimer's disease. They may become afraid, confused, sad, angry, frustrated, guilty, worried, or embarrassed -- just to name a few potential feelings. Although each child reacts differently, there are some common fears:
1. The grandparent doesn't love them anymore
2. Their grandparent may be crazy
3. It's their fault that their grandparent is sick
4. They may catch the disease
5. Their parent(s) may get it
Loneliness and depression in spousal caregivers [Arch Psychiatr Nurs. 2003] - PubMed - NCBI
Loneliness and depression in spousal car... [Arch Psychiatr Nurs. 2003] - PubMed - NCBI: Arch Psychiatr Nurs. 2003 Jun;17(3):135-43.
Loneliness and depression in spousal caregivers of those with Alzheimer's disease versus non-caregiving spouses.
William F Connell School of Nursing, Boston College, Chestnut Hill, MA 02467-3812, USA. B29111@aol.com
Abstract
Loneliness as a factor in the development of depression in Alzheimer's disease (AD) spousal caregivers has been given little attention. In this sample, 49 AD caregiving spouses reported significantly higher levels of loneliness and depression than did 52 non-caregiving spouses. AD caregiving wives reported greater loss of self and significantly higher levels of loneliness and depression than did AD caregiving husbands. Loneliness was the only predictive variable for AD caregiver depression, explaining 49% of the total variance. To meet the mental health needs of AD caregiving spouses, loneliness must be addressed along with the development of nursing interventions.
Loneliness and depression in spousal caregivers of those with Alzheimer's disease versus non-caregiving spouses.
William F Connell School of Nursing, Boston College, Chestnut Hill, MA 02467-3812, USA. B29111@aol.com
Abstract
Loneliness as a factor in the development of depression in Alzheimer's disease (AD) spousal caregivers has been given little attention. In this sample, 49 AD caregiving spouses reported significantly higher levels of loneliness and depression than did 52 non-caregiving spouses. AD caregiving wives reported greater loss of self and significantly higher levels of loneliness and depression than did AD caregiving husbands. Loneliness was the only predictive variable for AD caregiver depression, explaining 49% of the total variance. To meet the mental health needs of AD caregiving spouses, loneliness must be addressed along with the development of nursing interventions.
Planning Checklist: For patients and their caregivers preparing to leave a hospital, nursing home, or other care setting11376.pdf
- http://www.medicare.gov/publications/pubs/pdf/11376.pdf
Your Discharge Planning Checklist:
During your stay, your doctor and the staff will work with you to plan for
your discharge. You and your caregiver (a family member or friend who may
be helping you) are important members of the planning team. Below is a
checklist of important things you and your caregiver should know to prepare
for discharge.
Instructions:
•
Use this checklist early and often during your stay.
Talk to your doctor and the staff (like a discharge planner, social worker, or nurse) about the items on the checklist.
Check the box next to each item when you and your caregiver complete it.
Use the notes column to write down important information
(like names and phone numbers).
Skip any items that don’t apply to you
Your Discharge Planning Checklist:
For patients and their caregivers preparing to leave a hospital, nursing home,
or other care setting
During your stay, your doctor and the staff will work with you to plan for
your discharge. You and your caregiver (a family member or friend who may
be helping you) are important members of the planning team. Below is a
checklist of important things you and your caregiver should know to prepare
for discharge.
Instructions:
•
Use this checklist early and often during your stay.
Talk to your doctor and the staff (like a discharge planner, social worker, or nurse) about the items on the checklist.
Check the box next to each item when you and your caregiver complete it.
Use the notes column to write down important information
(like names and phone numbers).
Skip any items that don’t apply to you
Clinical Trials for Alzheimer's Disease and Dementia | Alzheimer's Association Research Center
Clinical Trials for Alzheimer's Disease and Dementia | Alzheimer's Association Research Center:
They need your help to advance research
Through clinical trials, researchers test new ways to detect, treat and prevent Alzheimer's disease and dementia. Recruiting and retaining clinical trial participants is now the greatest obstacle, other than funding, to developing the next generation of Alzheimer's treatments.
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They need your help. Without participation, finding a cure is virtually impossible.
#alzheimers
They need your help to advance research
Through clinical trials, researchers test new ways to detect, treat and prevent Alzheimer's disease and dementia. Recruiting and retaining clinical trial participants is now the greatest obstacle, other than funding, to developing the next generation of Alzheimer's treatments.
------
They need your help. Without participation, finding a cure is virtually impossible.
#alzheimers
Download EasyLiving Free "Long Distance Caregiver Checkli
Download EasyLiving Free "Long Distance Caregiver Checkli
The EasyLiving Home Caregiving Difference: With many years advocating for the rights of seniors and their families in Florida, we recognized what was lacking among private duty home care providers that elders needed most: flexible, high quality, personalized home caregiving. We established EasyLiving in response to what we would want for our own family, more personalized service, flexible scheduling and reliable, expert caregivers. We’re at your service whenever and wherever you need us, with home care for the way you live.
Phone: 727-448-0900
Fax: 727-443-5258 1180 Ponce de Leon Blvd., Suite 701 Clearwater, FL 33756 Serving Pinellas and Pasco Counties-Clearwater, Largo, Belleair, Seminole, St. Petersburg, Dunedin, Palm Harbor, Tarpon Springs, New Port Richey and more
The EasyLiving Home Caregiving Difference: With many years advocating for the rights of seniors and their families in Florida, we recognized what was lacking among private duty home care providers that elders needed most: flexible, high quality, personalized home caregiving. We established EasyLiving in response to what we would want for our own family, more personalized service, flexible scheduling and reliable, expert caregivers. We’re at your service whenever and wherever you need us, with home care for the way you live.
Phone: 727-448-0900
Fax: 727-443-5258 1180 Ponce de Leon Blvd., Suite 701 Clearwater, FL 33756 Serving Pinellas and Pasco Counties-Clearwater, Largo, Belleair, Seminole, St. Petersburg, Dunedin, Palm Harbor, Tarpon Springs, New Port Richey and more
Senior Care Tips for Sundowners Syndrome
Senior Care Tips for Sundowners Syndrome: EasyLiving Blog
Have you noticed your loved one with dementia experiencing changed sleeping patterns and more difficulty late in the day?
Most likely you are experiencing the set of symptoms termed Sundowners Syndrome or sundowning behavior in dementia. For a variety of reasons (from our bodies' natural rhythms and light signals to learned patterns), persons with dementia may have particular difficulty in the late afternoon and evening hours. The person often feels a sense of restlesness and agitation--a need to go somewhere or do something, the sense of being unsettled. This may manifest itself as a need "to go home" and lead to wandering or may show up in a variety of behaviors.
Senior care providers should be aware of this set of symptoms and watch for such patterns. A care facility may want to staff this time of day differently or plan for specific activities and try to manage the environment. Some examples include changes to lighting, providing distracting and/or calming activities during this time, ensuring residents have a snack and are well-rested and reducing irritating stimuli. More one-on-one attention may be needed for safety and reassurance during late afternoons and evenings.
Senior caregivers caring for a loved one or client at home should also monitor for different behaviors and patterns. What are some things you can do to better manage sundowners syndrome and provide safe, dignified dementia care?
Have you noticed your loved one with dementia experiencing changed sleeping patterns and more difficulty late in the day?
Most likely you are experiencing the set of symptoms termed Sundowners Syndrome or sundowning behavior in dementia. For a variety of reasons (from our bodies' natural rhythms and light signals to learned patterns), persons with dementia may have particular difficulty in the late afternoon and evening hours. The person often feels a sense of restlesness and agitation--a need to go somewhere or do something, the sense of being unsettled. This may manifest itself as a need "to go home" and lead to wandering or may show up in a variety of behaviors.
Senior care providers should be aware of this set of symptoms and watch for such patterns. A care facility may want to staff this time of day differently or plan for specific activities and try to manage the environment. Some examples include changes to lighting, providing distracting and/or calming activities during this time, ensuring residents have a snack and are well-rested and reducing irritating stimuli. More one-on-one attention may be needed for safety and reassurance during late afternoons and evenings.
Senior caregivers caring for a loved one or client at home should also monitor for different behaviors and patterns. What are some things you can do to better manage sundowners syndrome and provide safe, dignified dementia care?
Wandering and Elopement Resources | NCCDP Endorses Project Lifesaver
Wandering and Elopement Resources: Practitioner Definition
NCCDP Endorses Project Lifesaver
FEATURED LINKS
Elopement Resource Manual from Healthcare Association of New York
Wandering and Elopement: Litigation Issues from http://www.nccdp.org/wandering.htm
Marie Boltz, MSN, APRN-BC, NHA Director of Practice Initiatives
The John A Hartford Foundation Institute for Geriatric Nursing
NYU College of Nursing
Introduction
One of the most challenging, life-threatening issues related to care of the person with cognitive loss is the occurrence of wandering, wherein the person strays into unsafe territories and may be harmed. The most dangerous form of wandering is elopement in which the confused person leaves an area and does not return. The risk of wandering has become a growing concern of families, long-term care facilities, regulators, and insurers
.1 In addition to civil liability, care providers can be fined by the state regulatory agency for failure to prevent elopement.
2 The effects upon the population served and the staff are no less dramatic. The sense of security of those served and their families is severely shaken, and staff morale as well as the organization’s reputation is dealt a devastating blow.
3 The aim of this chapter is to define wandering, elopement, and related issues, and to summarize the scope of the problems in terms of prevalence and effect. The types and causes of wandering and generally accepted approaches to care will be discussed. The regulatory and risk management considerations will also be presented. A hypothetical case will be presented. Finally, the role of an expert witness will be discussed.
NCCDP Endorses Project Lifesaver
FEATURED LINKS
Elopement Resource Manual from Healthcare Association of New York
- Alert Systems for Missing Adults, CMS report for Congress 2009, Silver Alert Legislation, Golden Alert Legislation
- Alzheimer Dandyfunk for Caregivers - List many products Motion sensors and Tracking
- A Shoe for Wanderers - (with tracking device), October 14 2011 NY Times
- Best Practices for Preventing Elopement With Patients With Dementia in Hospitals - FREE VIDEO TO VIEW
- Breadcrumb - Wandering Solution
- DBS Productions - Alzheimer's Links
- dbs Productions - The Source of Search and Rescue Research, Publications and Training - Wandering Incident: Preparedness
- Dehydration Risk Assessment Tool
- Dementia Care Mapping
- Dementia Care Mapping Book
- Dewing Risk for Wandering Risk Assessment Tool
- Elopement Resource Manual
- Elopement Resource Manual from Healthcare Association of New York
- Elopement Risk Assessment Form
- EM Finders, Elopement Risk Assessment Form, Elopement Risk Assessment Decision Tree
- First Responder Training - Wandering and Elopement
- GPS Shoes
- Guide for the Use of Disguised Doors and other Preventive Exiting Strategies for People with Dementia
- Guidelines for Best Practice Elopement Prevention Assessments, policies and forms
- Keruve Family Direct Locator - GPS Watch and Receiver
- LifeProTekt
- Memory and Behavior Problems Checklist—1990R
- Mental State Exam (MMSE)
- Missing Resident Protocol and Risk Assessments Hazardous Wandering and Elopement Continuing Care Risk Management System
- Myth Busting: The Wandering Issue
- National Institute for Elopement Prevention and Resolution
- New York State EDGE Program Electronic Dementia Guide for Excellence
- Patient Leaves Nursing Home Three Times in One Day
- Personal Alarms: Safety Device or Hazard
- Practical Approaches to Dementia Care
- Project Lifesaver International and Lo Jack Safety Net Solution
- Revised Algase Wandering Scale (RAWS)
- RoamAlert - Stanley Healthcare Solutions
- Short Geriatric Depression Scale (SGDS)
- The Cohen-Mansfield Agitation Inventory: Long Form with Expanded Descriptions of Behaviors
- The Florida Factor, dbs Productions, Wandering Characteristics
- The Windsor Star, Canada, Family sues long term care home over death, November 26th 2012
- US Department of Health and Human Services -Agency for Health Care Research and Quality -
National Guideline Clearinghouse - Wandering Guidelines and Assessments - Vigil Health Solutions - Nurse Call and Dementia Monitoring Technology
- Wandering Behavior
- Wandering Committee Guidelines
- Wandering Behavior: Preparing for It and Preventing It.
- Wandering Protocol
Marie Boltz, MSN, APRN-BC, NHA Director of Practice Initiatives
The John A Hartford Foundation Institute for Geriatric Nursing
NYU College of Nursing
Introduction
One of the most challenging, life-threatening issues related to care of the person with cognitive loss is the occurrence of wandering, wherein the person strays into unsafe territories and may be harmed. The most dangerous form of wandering is elopement in which the confused person leaves an area and does not return. The risk of wandering has become a growing concern of families, long-term care facilities, regulators, and insurers
.1 In addition to civil liability, care providers can be fined by the state regulatory agency for failure to prevent elopement.
2 The effects upon the population served and the staff are no less dramatic. The sense of security of those served and their families is severely shaken, and staff morale as well as the organization’s reputation is dealt a devastating blow.
3 The aim of this chapter is to define wandering, elopement, and related issues, and to summarize the scope of the problems in terms of prevalence and effect. The types and causes of wandering and generally accepted approaches to care will be discussed. The regulatory and risk management considerations will also be presented. A hypothetical case will be presented. Finally, the role of an expert witness will be discussed.
Day Clock | Non traditional clock shows the periods of the day ( i.e particular part of the day)
Day Clock | Dementia Clock | Alzheimer’s Clock
The Day Clocks’ has a clear and simple display of “Now it’s Monday Morning” This clock is unlike any traditional clock you have seen. It does not
have one single number on its face, just the days of the week. Non traditional clock shows the periods of the day ( i.e particular part of the day)
Help your loved ones who have Dementia or memory problems In the US there are as many as 5.4 million people who have Dementia. If a loved one has dementia or any other memory loss problems, the DayClock will help remind them the time of day. Making dementia more manageable.
Help your loved ones who have Dementia or memory problems In the US there are as many as 5.4 million people who have Dementia. If a loved one has dementia or any other memory loss problems, the DayClock will help remind them the time of day. Making dementia more manageable.
The Aetrex Navistar GPS Footwear System · GPS Shoe
The Aetrex Navistar GPS Footwear System · GPS Shoe: GPS Shoe
Millions of seniors with dementia will wander in search of their lost memories. While we can’t find those remembrances, we can find the lost victims themselves.
The Mayo Clinic describes Alzheimer’s and the problem of Wandering: The disease can erase a person’s memory of once-familiar surroundings, as well as make it extremely difficult to adapt to new surroundings. As a result, people who have Alzheimer’s may wander away from their homes or care centers and turn up lost, frightened and disoriented — sometimes far from where they started.
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GPS shoes can help track people with Alzheimer's (video)
Millions of seniors with dementia will wander in search of their lost memories. While we can’t find those remembrances, we can find the lost victims themselves.
The Mayo Clinic describes Alzheimer’s and the problem of Wandering: The disease can erase a person’s memory of once-familiar surroundings, as well as make it extremely difficult to adapt to new surroundings. As a result, people who have Alzheimer’s may wander away from their homes or care centers and turn up lost, frightened and disoriented — sometimes far from where they started.
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GPS shoes can help track people with Alzheimer's (video)
Alzheimer’s Speaks / Shifting Our Dementia Care Culture / International Resources
Alzheimer’s Speaks / Shifting Our Dementia Care Culture / International Resources
Bottom line all businesses, communities as well as individuals need to become Dementia Friendly. The statistics alone show the numbers are staggering and only growing. Now is the time to get ahead of the game before negative outcomes increase. We offer "Dementia Friendly Programs" for both companies and individuals.
Alzheimer's Speaks believes collaboration is the key to living a successful and purpose filled life with dementia. By working together, we can push both conventional and alternative efforts forward in search of answers. By joining forces and sharing knowledge, we can win the battle against dementia.
Shopping for the Right In-home Help By Eileen Beal, MA
Shopping for the Right In-home Help: Shopping for the Right In-home Help
By Eileen Beal, MA
Home care vs. home health aide
Home care aides provide assistance with housekeeping and chores (meal preparation, shopping, errands, etc); socialization and companionship; and may also provide some personal care (bathing and grooming). In some areas, they are called personal care assistants.
Home health aides – increasingly certified nursing assistants (CNAs) and/or state tested nursing assistants (STNA) – provide medically-related care (check blood pressure and glucose levels, dress dry wounds, empty colostomy bags, etc.); assist with therapeutic treatments prescribed by a physician; supervise medication administration; etc.
“The client’s needs and the aide’s skill-level determine what the aide’s [hourly] fee will be. The more skills the aide has, the higher the cost,” says Debbie Adams, RN, the Director of the Cleveland, Ohio-based Western Reserve Area Agency on Aging’s Community Services and Support Program.
Write a job description
Using the information you’ve gathered from discussing and assessing your loved ones’ needs, write a detailed job description. “Care expectations vary from client to client, so having everything in writing means everyone knows, and meets, expectations,” says Lucy Andrews, the nurse/CEO at Santa Rosa, California-based At Your Service Home Care.
By Eileen Beal, MA
Home care vs. home health aide
Home care aides provide assistance with housekeeping and chores (meal preparation, shopping, errands, etc); socialization and companionship; and may also provide some personal care (bathing and grooming). In some areas, they are called personal care assistants.
Home health aides – increasingly certified nursing assistants (CNAs) and/or state tested nursing assistants (STNA) – provide medically-related care (check blood pressure and glucose levels, dress dry wounds, empty colostomy bags, etc.); assist with therapeutic treatments prescribed by a physician; supervise medication administration; etc.
“The client’s needs and the aide’s skill-level determine what the aide’s [hourly] fee will be. The more skills the aide has, the higher the cost,” says Debbie Adams, RN, the Director of the Cleveland, Ohio-based Western Reserve Area Agency on Aging’s Community Services and Support Program.
Write a job description
Using the information you’ve gathered from discussing and assessing your loved ones’ needs, write a detailed job description. “Care expectations vary from client to client, so having everything in writing means everyone knows, and meets, expectations,” says Lucy Andrews, the nurse/CEO at Santa Rosa, California-based At Your Service Home Care.
Renting a Stairlift for short periods
Renting a Stairlift for the Holidays | The Intentional Caregiver: Renting a Stairlift for the Holidays
courtesy of depositphotos.com
Christmas is an exciting time, filled with giving presents and simply being together as a family. You want to be able to enjoy the time spent with family and friends and not spend valuable family time worrying about mobility issues.
If you have become less able in recent years, or if you are caregiving for someone who has, it is understandable that you may not have the same holiday cheer you once had. You may find going to visit family and friends a chore as you or your care recipient struggle to climb up their staircase. You may feel like you will be a burden if you or your loved one cannot move freely around their home. You do not want your family to have to work their Christmas plans around any lack of mobility so you may suggest you will stay at home.
What most people do not realise is that if you can rent a stairlift for the holidays! A mobility lift is the perfect answer to all your mobility needs during the busy Christmas period. Perhaps your children live far away and you would like to stay with them before Christmas until the New Year.
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Features of typical rental lifts include:
courtesy of depositphotos.com
Christmas is an exciting time, filled with giving presents and simply being together as a family. You want to be able to enjoy the time spent with family and friends and not spend valuable family time worrying about mobility issues.
If you have become less able in recent years, or if you are caregiving for someone who has, it is understandable that you may not have the same holiday cheer you once had. You may find going to visit family and friends a chore as you or your care recipient struggle to climb up their staircase. You may feel like you will be a burden if you or your loved one cannot move freely around their home. You do not want your family to have to work their Christmas plans around any lack of mobility so you may suggest you will stay at home.
What most people do not realise is that if you can rent a stairlift for the holidays! A mobility lift is the perfect answer to all your mobility needs during the busy Christmas period. Perhaps your children live far away and you would like to stay with them before Christmas until the New Year.
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Features of typical rental lifts include:
- Brand new rail and fully reconditioned seat
- Comfortable padded seating and back rest
- Fold up seat, arms and foot rest
- Remote controls
- Battery powered
- Directional paddle switches
- Digital diagnostic display
- Safety sensors
The MedCottage, also nicknamed "the Granny pod",
Where to put elderly parents - National Green Living | Examiner.com: The MedCottage, also nicknamed "the Granny pod", is similar to a three-room apartment but it is equipped like a hospital room. Its water, electric and sewage systems work off the caregiver's home. It has a kitchenette and laundry facilities and comes in three sizes, 288 square feet, 299 square feet, or 605 square feet. The kitchen has a small refrigerator, microwave, and medication dispenser. One wall has a first-aid kit and even a defibrillator machine. There are safety rails, the bathroom is handicapped accessible, and there are three built-in cameras with one in the ceiling over the kitchen area and one in the floor to provide alerts of falls in the unit. Read the Washington Post article for more pictures of the unit and the story of the first occupant of one.
Smart robotic features monitor vital signs, filter air contaminants, and communicate with the outside world. Computers prompt with medication reminders and sensors alert caregivers of problems like the occupant falling and needing help. There are entertainment options for music, literature and watching movies. The state law in Virginia, where they originated, classified them a few years ago as “temporary family health-care structures.” They may not be legal in some states, so get them pre-approved first before buying one.
Smart robotic features monitor vital signs, filter air contaminants, and communicate with the outside world. Computers prompt with medication reminders and sensors alert caregivers of problems like the occupant falling and needing help. There are entertainment options for music, literature and watching movies. The state law in Virginia, where they originated, classified them a few years ago as “temporary family health-care structures.” They may not be legal in some states, so get them pre-approved first before buying one.
Basics of Alzheimer’s Disease |by Elayne Forgie,
Stages of Alzheimer’s
Early Stages – What day is it?
The disease begins in the hippocampus, then spreads to the frontal temporal lobe affecting recent memory, learning of new information, thinking, planning and organization.
Middle Stages – Who are you?
It moves further into the frontal temporal lobe and into the occipital and parietal lobes affecting sensory perception, communication, behaviors, impulse control, judgment and attention to personal appearance.
Late Stages – Who am I?
In the final stages the disease spreads throughout the brain and affects the ability to recognize anyone, including themselves, to control bodily functions and to eat and drink. Eventually, the brain can no longer tell the body what to do.
by Elayne Forgie, President/CEO on Dec 28, 2012 in Alzheimer's Care West Palm Beach ; more information on Alzheimer’s disease, dementia or another cognitive impairment, contact Alzheimer's Care West Palm Beach at (800) 209-4342
Early Stages – What day is it?
The disease begins in the hippocampus, then spreads to the frontal temporal lobe affecting recent memory, learning of new information, thinking, planning and organization.
Middle Stages – Who are you?
It moves further into the frontal temporal lobe and into the occipital and parietal lobes affecting sensory perception, communication, behaviors, impulse control, judgment and attention to personal appearance.
Late Stages – Who am I?
In the final stages the disease spreads throughout the brain and affects the ability to recognize anyone, including themselves, to control bodily functions and to eat and drink. Eventually, the brain can no longer tell the body what to do.
by Elayne Forgie, President/CEO on Dec 28, 2012 in Alzheimer's Care West Palm Beach ; more information on Alzheimer’s disease, dementia or another cognitive impairment, contact Alzheimer's Care West Palm Beach at (800) 209-4342
States With Filial Responsibility Laws | You May Have to Pay for Your Parents' Care
30states.pdf (application/pdf Object)
States with filial responsibility laws are: Alaska, Arkansas,
California, Connecticut, Delaware, Georgia, Idaho, Indiana, Iowa,
Kentucky, Louisiana, Maryland, Massachusetts, Mississippi, Montana,
Nevada, New Hampshire, New Jersey, North Carolina, North Dakota,
Ohio, Oregon, Pennsylvania, Rhode Island, South Dakota,
Tennessee, Utah, Vermont, Virginia, and West Virginia.
You May Have to Pay for Your Parents' Care
States with filial responsibility laws are: Alaska, Arkansas,
California, Connecticut, Delaware, Georgia, Idaho, Indiana, Iowa,
Kentucky, Louisiana, Maryland, Massachusetts, Mississippi, Montana,
Nevada, New Hampshire, New Jersey, North Carolina, North Dakota,
Ohio, Oregon, Pennsylvania, Rhode Island, South Dakota,
Tennessee, Utah, Vermont, Virginia, and West Virginia.
The Collaboration Trap – The Wrong Way to Innovate | Senior Housing Forum
The Collaboration Trap – The Wrong Way to Innovate | Senior Housing Forum: Two Big Collaboration Problems
Collaboration is a good way to solve well defined problems where there is already a set of possible solutions. It is a terrible way to innovate. There are two reasons why collaboration is an ineffective . . . even impossible path to innovation:
1. Unequal Power – Good collaborative efforts put considerable time and effort into making sure all stakeholders have a voice. The process may even include a framework that allows the minor stakeholders have a disproportionately strong voice. Yet for all of that, some participants will have much more influence than others. In some cases it is strength that comes from position and in other cases, it comes from having a strong charismatic or forceful personality.
2. Accommodation – The word collaboration suggests that everyone has a voice and every voice has value. This means that as solutions begin to emerge there is an innate tendency to make sure everyone has contributed to the solution. That each person can say about some part of the solution “That was my idea” or “my contribution.” This means that ultimately, the solution(s) will regress to the mean, in other words regress to something that accommodates everyone even if not optimal.
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author: Steve Moran
smoran@seniorhousingforum.net
seniorhousingforum.net
916-390-2238
If you like this story subscribe to his email list.
++++++++++++++
Don’t miss a single issue of Senior Housing Forum, subscribe today. It is free! We do not sell or share your contact information. The posts are practical and never too long.
Go to the main page of Senior Housing Forum and on the top you will see a link to our subscription sign-up page. You will receive notification when a new article is posted. You can unsubscribe at any time.
Collaboration is a good way to solve well defined problems where there is already a set of possible solutions. It is a terrible way to innovate. There are two reasons why collaboration is an ineffective . . . even impossible path to innovation:
1. Unequal Power – Good collaborative efforts put considerable time and effort into making sure all stakeholders have a voice. The process may even include a framework that allows the minor stakeholders have a disproportionately strong voice. Yet for all of that, some participants will have much more influence than others. In some cases it is strength that comes from position and in other cases, it comes from having a strong charismatic or forceful personality.
2. Accommodation – The word collaboration suggests that everyone has a voice and every voice has value. This means that as solutions begin to emerge there is an innate tendency to make sure everyone has contributed to the solution. That each person can say about some part of the solution “That was my idea” or “my contribution.” This means that ultimately, the solution(s) will regress to the mean, in other words regress to something that accommodates everyone even if not optimal.
--
author: Steve Moran
smoran@seniorhousingforum.net
seniorhousingforum.net
916-390-2238
If you like this story subscribe to his email list.
++++++++++++++
Don’t miss a single issue of Senior Housing Forum, subscribe today. It is free! We do not sell or share your contact information. The posts are practical and never too long.
Go to the main page of Senior Housing Forum and on the top you will see a link to our subscription sign-up page. You will receive notification when a new article is posted. You can unsubscribe at any time.
Caregiver Cards
Communication Is Important
Communication is considered a shared responsibility. However, in dealing with persons affected with Alzheimer’s and dementias, the responsibility for understanding and being understood lies squarely with the caregiver.Communication is quite simply the act of conveying or sharing information. Alzheimer’s and related dementias eventually create a barrier to effective communication, mostly dealing with the language part of communication.
Caregiver Cards was founded off of the idea that not only are persons living with Alzheimer’s entitled to supportive and the best possible care, so are the caregivers. We understand so well, because we have cared for our loved ones too.
žCommunication is considered a shared responsibility. However, in dealing with persons affected with Alzheimer’s and similar dementias, the responsibility for understanding and being understood lies squarely with YOU the caregiver.
žYou, the caregiver, will be in charge of handling Caregiver Cards, and helping your loved one find their voice with a new style of communicating.
How to Interact with a Person with Dementia in Distress |
Tips for Families & Volunteers on Visiting the Person with Dementia
MindStart - Puzzles, Games, and More for Persons with Memory Loss
Tips for Having a Good Visit
Individuals with dementia can have difficulty with recent memories and with communicating, making it harder to maintain relationships with others on their own. Often, their friends, neighbors, and extended family members do not know how to handle this, so stop visiting or calling. Offer these tips to decrease the fear and make the visit successful.
Choose a quiet calm location
Introduce yourself, as needed
Keep focus on the person, using eye contact and patience
Avoid correcting; instead offer reassurance and praise
Avoid open-ended questions; instead use yes/no questions or questions where 2 choices are given
Monitor body language and facial expressions of the person
Enter their world. Talk about what they are thinking about at the time.
Reminiscence is a wonderful tool. Talk about past interests or significant life events.
Use adapted Alzheimer activities to form a connection and have fun together.
Individuals with dementia can have difficulty with recent memories and with communicating, making it harder to maintain relationships with others on their own. Often, their friends, neighbors, and extended family members do not know how to handle this, so stop visiting or calling. Offer these tips to decrease the fear and make the visit successful.
Choose a quiet calm location
Introduce yourself, as needed
Keep focus on the person, using eye contact and patience
Avoid correcting; instead offer reassurance and praise
Avoid open-ended questions; instead use yes/no questions or questions where 2 choices are given
Monitor body language and facial expressions of the person
Enter their world. Talk about what they are thinking about at the time.
Reminiscence is a wonderful tool. Talk about past interests or significant life events.
Use adapted Alzheimer activities to form a connection and have fun together.
Don't know what to do when visiting with the person with dementia?
This is the perfect 'kit' to have a variety of activities that work for different stages of dementia.
Includes your choice of one 26 piece puzzle, various level re-usable word searches, and lacing card in a handy binder.
Official Site of the National Council of Certified Dementia Practitioners, LLC
Official Site of the National Council of Certified Dementia Practitioners, LLC: The newest component of the NCCDP is the Alzheimer’s and Dementia Staff Education Week Tool Kit.
The Tool Kit is available at www.nccdp.org. The Tool Kit and the declaration by the NCCDP Alzheimer's and Dementia Staff Education Week February 14th to the 21st was developed and implemented to bring awareness to the importance of staff educators being trained and certified in dementia care and to provide education by means of face to face interactive classroom environment and to provide comprehensive dementia education to all healthcare professionals and line staff. NCCDP recognizes the important contribution that Nurse Educators and Staff Educators provide to health care professionals and line staff and in honor of this week the NCCDP is seeking nominations for Nurse Educator and Staff Educator of the Year.
Currently there are no national standards for dementia education. The regulations are different from state to state. The NCCDP recommends at minimum an initial 8 hours of dementia education to all staff. Through out the year, additional dementia education should be provided that incorporates new advances, culture change and innovative ideas.
The tool kit includes:
In addition to facilitating the Train the Trainer programs, The NCCDP promotes dementia education and certification of all staff as Certified Dementia Practitioners (CDP®).
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The Tool Kit is available at www.nccdp.org. The Tool Kit and the declaration by the NCCDP Alzheimer's and Dementia Staff Education Week February 14th to the 21st was developed and implemented to bring awareness to the importance of staff educators being trained and certified in dementia care and to provide education by means of face to face interactive classroom environment and to provide comprehensive dementia education to all healthcare professionals and line staff. NCCDP recognizes the important contribution that Nurse Educators and Staff Educators provide to health care professionals and line staff and in honor of this week the NCCDP is seeking nominations for Nurse Educator and Staff Educator of the Year.
Currently there are no national standards for dementia education. The regulations are different from state to state. The NCCDP recommends at minimum an initial 8 hours of dementia education to all staff. Through out the year, additional dementia education should be provided that incorporates new advances, culture change and innovative ideas.
The tool kit includes:
- Free Power Point / Over Head In-services for Health Care Staff, Tests and Answers, Seminar Evaluation and Seminar Certificates.
- 97 Ways To Recognize Alzheimer’s and dementia Staff Education Week
- 20 Reasons Why You Should Provide Comprehensive Alzheimer’s and Dementia Training to Your Staff by A Live Instructor
- Dementia Word Search Games & Interactive Exercises
- Movies and Books About Alzheimer’s You Don’t Want To Miss
- Proclamation & Sample Agenda for Opening Ceremony & Sample Letter to Editor
- Contest Entry Forms- Staff Education week
- Alzheimer’s Bill of Rights & Alzheimer’s Patient Prayer
- Nurse Educator / In-service Director of The Year Nomination F
In addition to facilitating the Train the Trainer programs, The NCCDP promotes dementia education and certification of all staff as Certified Dementia Practitioners (CDP®).
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Incontinence: Why You Shouldn’t Be Embarrassed
Incontinence: Why You Shouldn’t Be Embarrassed:
It’s a topic most people don’t want to talk about, but it’s too important to avoid: incontinence. As we continue to educate our readers throughout Alzheimer's Awareness Month, it's important to shed light on the tie between dementia and incontinence.
Unfortunately, many people faced with worsening dementia are dealt a second, unexpected blow when incontinence begins to happen regularly. It may be an uncomfortable topic, but it’s incredibly common; as dementia progresses, incontinence becomes almost inevitable, according to a 2006 study. Another reason to deal with this care issue head-on is that it is the most common reason a person with dementia is institutionalized.
>>>>
It is also a reason many must stop attending Day Care
DLMifm
It’s a topic most people don’t want to talk about, but it’s too important to avoid: incontinence. As we continue to educate our readers throughout Alzheimer's Awareness Month, it's important to shed light on the tie between dementia and incontinence.
Unfortunately, many people faced with worsening dementia are dealt a second, unexpected blow when incontinence begins to happen regularly. It may be an uncomfortable topic, but it’s incredibly common; as dementia progresses, incontinence becomes almost inevitable, according to a 2006 study. Another reason to deal with this care issue head-on is that it is the most common reason a person with dementia is institutionalized.
>>>>
It is also a reason many must stop attending Day Care
DLMifm
seniorszen.com is a free resource for finding local senior housing in Canada & Alzheimer's Care-- by Province
seniorszen.com is a free resource for finding local senior housing in Canada. They provide comprehensive information on Independent Living, Home Care, Residential Care Homes, Assisted Living, Alzheimer's Care, and Nursing Homes in all Canadian provinces. SeniorsZen's Mailing Address:
Suite 400 - 601 West Broadway Vancouver, BC V5Z 4C2 Canada
Alzheimer's Care-- by Province
Alberta http://www.seniorszen.com/care/alzheimers-care/alberta
British Columbia http://www.seniorszen.com/care/alzheimers-care/british-columbia
Manitoba http://www.seniorszen.com/care/alzheimers-care/manitoba
Nunavut http://www.seniorszen.com/care/alzheimers-care/nunavut
New Brunswick http://www.seniorszen.com/care/alzheimers-care/new-brunswick
Newfoundland - labrador http://www.seniorszen.com/care/alzheimers-care/newfoundland-labrador
Northwest Territories http://www.seniorszen.com/care/alzheimers-care/northwest-territories
Nova Scotia http://www.seniorszen.com/care/alzheimers-care/nova-scotia
Ontario http://www.seniorszen.com/care/alzheimers-care/ontario
Prince Edward Island http://www.seniorszen.com/care/alzheimers-care/prince-edward-island
Quebec http://www.seniorszen.com/care/alzheimers-care/quebec
Saskatchewan http://www.seniorszen.com/care/alzheimers-care/saskatchewan
Yukon Territory http://www.seniorszen.com/care/alzheimers-care/yukon-territory
Dr. Bruce A. Chernof, MD: Synergy for Senior Care: Improving Partnerships Between Medical Services and Community-Based Care
"
Federal and state governments now place increased pressure on the health care sector to provide better quality care while reducing costs, such as readmission penalties and quality ratings on Medicare Advantage plans. However, many of the issues that emerge in the chasm between a hospital discharge and full re-entry at home are things that are beyond the hospital walls. For example, could the person navigate the three steps to get inside the home? If medications need to be taken with food, is there food in the refrigerator? Did the prescriptions get filled within 24 hours in the first place? Does the daughter know how to safely help mom get from the recliner to the bathroom?
These and other key issues are commonplace for a whole range of community-based organizations that answer the calls from frustrated family members and help make arrangements to smooth the transitions. Organizations such as aging and disability resource centers, faith-based groups and many others have much to offer health care systems that can no longer operate only inside the medical walls. Developing, fostering and managing partnerships between community-based organizations and the health care sector is a key step towards addressing the total needs of older adults and people with disabilities as critical junctures in their health. This is particularly true for individuals eligible for both Medicare and Medicaid.
While efforts are underway at the national level to improve care transitions, the dearth of information on how best to build partnerships between the community-based long-term services and supports and the medical sector is staggering. Both the health care sector and community-based services sector have been working on tackling the issue of care coordination, but have been doing so from their own perspectives and biases. Beyond anecdotes, there are few models on how to create, formalize and maintain these partnerships, or how to define and delineate what a joint approach to care transitions and care
Federal and state governments now place increased pressure on the health care sector to provide better quality care while reducing costs, such as readmission penalties and quality ratings on Medicare Advantage plans. However, many of the issues that emerge in the chasm between a hospital discharge and full re-entry at home are things that are beyond the hospital walls. For example, could the person navigate the three steps to get inside the home? If medications need to be taken with food, is there food in the refrigerator? Did the prescriptions get filled within 24 hours in the first place? Does the daughter know how to safely help mom get from the recliner to the bathroom?
These and other key issues are commonplace for a whole range of community-based organizations that answer the calls from frustrated family members and help make arrangements to smooth the transitions. Organizations such as aging and disability resource centers, faith-based groups and many others have much to offer health care systems that can no longer operate only inside the medical walls. Developing, fostering and managing partnerships between community-based organizations and the health care sector is a key step towards addressing the total needs of older adults and people with disabilities as critical junctures in their health. This is particularly true for individuals eligible for both Medicare and Medicaid.
While efforts are underway at the national level to improve care transitions, the dearth of information on how best to build partnerships between the community-based long-term services and supports and the medical sector is staggering. Both the health care sector and community-based services sector have been working on tackling the issue of care coordination, but have been doing so from their own perspectives and biases. Beyond anecdotes, there are few models on how to create, formalize and maintain these partnerships, or how to define and delineate what a joint approach to care transitions and care
Pensioners set up lunch clubs after new council charges imposed | Carers Chill4us
Pensioners set up lunch clubs after new council charges imposed | Carers Chill4us: PENSIONERS have formed their own lunch clubs which helps carers
Tuesday, October 30, 2012
Isle of Thanet Gazette
Minnis Day Centre in Birchington is the sole remaining publicly run centre in Thanet. Some people have stopped attending after being hit by charges of up to £45 per day.
Carer Barry Hardy, 85, set up a club because he cannot afford the new charges to take his wife Kay to the centre.
Following talks between users and KCC, Mr Hardy decided to organise a club to give carers and pensioners a place to gather that did not break the bank.
Tuesday, October 30, 2012
Isle of Thanet Gazette
Minnis Day Centre in Birchington is the sole remaining publicly run centre in Thanet. Some people have stopped attending after being hit by charges of up to £45 per day.
Carer Barry Hardy, 85, set up a club because he cannot afford the new charges to take his wife Kay to the centre.
Following talks between users and KCC, Mr Hardy decided to organise a club to give carers and pensioners a place to gather that did not break the bank.
Treatments for Behavior | Alzheimer's Association
Treatments for Behavior | Alzheimer's Association: Treatments for Behavior
Common changes in behavior
Many people find the changes in behavior caused by Alzheimer's to be the most challenging and distressing effect of the disease. The chief cause of behavioral symptoms is the progressive deterioration of brain cells. However, medication, environmental influences and some medical conditions also can cause symptoms or make them worse.
Overnight Dementia 'Camp' Allows Caregivers Rest : NPR
Overnight Dementia 'Camp' Allows Caregivers Rest : NPR: Overnight Dementia 'Camp' Allows Caregivers Rest
by The Associated Press
text size A A A
NEW YORK October 1, 2012, 05:53 pm ET
NEW YORK (AP) — Just after 10 p.m., when most people their age are going to sleep, a group of elderly folks suffering from dementia are just getting started, dancing and shaking tambourines and maracas in a raucous version of "La Bamba."
"It's a party," says an 81-year-old woman, among dozens of patients brought to a Bronx nursing home every night for a structured series of singalongs, crafts and therapy sessions that lasts until dawn.
The program, which appears to be rare, is kind of a "night camp" for dementia victims who don't sleep at night or tend to wake up agitated or become frightened or disoriented by the fall of darkness.
It's meant to provide care and activity — lots of activity — to fill the wee hours for people with Alzheimer's and similar diseases who live at home. And it's meant to provide their caregivers — usually a son or daughter — with a treasured night's sleep.
by The Associated Press
text size A A A
NEW YORK October 1, 2012, 05:53 pm ET
NEW YORK (AP) — Just after 10 p.m., when most people their age are going to sleep, a group of elderly folks suffering from dementia are just getting started, dancing and shaking tambourines and maracas in a raucous version of "La Bamba."
"It's a party," says an 81-year-old woman, among dozens of patients brought to a Bronx nursing home every night for a structured series of singalongs, crafts and therapy sessions that lasts until dawn.
The program, which appears to be rare, is kind of a "night camp" for dementia victims who don't sleep at night or tend to wake up agitated or become frightened or disoriented by the fall of darkness.
It's meant to provide care and activity — lots of activity — to fill the wee hours for people with Alzheimer's and similar diseases who live at home. And it's meant to provide their caregivers — usually a son or daughter — with a treasured night's sleep.
Can you clone: The "Elder Serve Program at Night
The "Elder Serve Program at Night -- provides a supportive environment from early evening to early morning from 7pm-7am.
Sleep disturbances, confusion and wandering can put those with Alzheimer’s and other dementia at risk at if not monitored at night.
During the night family caregivers are able to have caregiving relief in the form of a full nights rest.
During the daytime those with Alzheimer’s and other dementia are able to return home. In some cases the program can be an alternative to full time placement in a nursing home.
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Google for : "Elder Serve Program at Night " for details and reviews
Family Value: Men at Work—As Caregivers - WSJ.com
Family Value: Men at Work—As Caregivers - WSJ.com: Agencies and private firms are rolling out new tools and services to help the growing number of men taking on the role of family caregiver—many of whom are still trying to hold down their day jobs.
Although the traditional stereotype of a family member taking care of an elderly relative is a wife, daughter or daughter-in-law, 45% of Americans in that role are men, according to a Pew Research Center report published in July. It was based on interviews with more than 3,000 adults in 2010.
Although the traditional stereotype of a family member taking care of an elderly relative is a wife, daughter or daughter-in-law, 45% of Americans in that role are men, according to a Pew Research Center report published in July. It was based on interviews with more than 3,000 adults in 2010.
Help for a 'hidden population' of caregiving kids - CNN.com
Help for a 'hidden population' of caregiving kids - CNN.com: According to a 2006 study conducted by Civic Enterprises for the Bill and Melinda Gates Foundation, 22% of high school dropouts in the United States leave school to care for a family member (PDF).
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In a matter of minutes, the 14-year-old went from child to child caregiver.
Shifren spent the next month bathing, dressing and feeding her mom before school. When she got home, she cleaned the house and made dinner. Her dad helped when he could, but he worked long hours to support the family.
Two years later, Shifren had to do it all again when her mom had another heart attack. And then again when a third heart attack hit two years after that.
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09:00 AM ET
Young caregivers put life on hold
By Jacque Wilson, CNN
(CNN) - Kim Shifren came home from school one day to find her world turned upside down. Her mom had suffered a massive heart attack; doctors said she would need weeks to recover.In a matter of minutes, the 14-year-old went from child to child caregiver.
Shifren spent the next month bathing, dressing and feeding her mom before school. When she got home, she cleaned the house and made dinner. Her dad helped when he could, but he worked long hours to support the family.
Two years later, Shifren had to do it all again when her mom had another heart attack. And then again when a third heart attack hit two years after that.
Healthcare professionals need training to deal with the sexual needs of patients, study finds
All healthcare professionals need training to deal with the sexual needs of patients, study finds: All Healthcare Professionals Need Training to Deal With the Sexual Needs of Patients, Study Finds
The findings were so encouraging that the authors of the study, published in the November issue of the Journal of Advanced Nursing, are calling for all healthcare practitioners to receive sexuality training, regardless of their role or the area of healthcare they work in.
ScienceDaily (Oct. 11, 2012) — Providing healthcare staff with a one-day training course on dealing with the sexual needs of people with an acquired physical disability gave them greater understanding of the issues patients faced and enabled them to address intimate questions more comfortably and proactively.
The findings were so encouraging that the authors of the study, published in the November issue of the Journal of Advanced Nursing, are calling for all healthcare practitioners to receive sexuality training, regardless of their role or the area of healthcare they work in.
Pocketalker® - Helping People Hear
Pocketalker® - Williams Sound - Helping People Hear
The Pocketalker® amplifies sounds closest to the listener while reducing background noise. Ideal for one-on-one conversation, small group and TV listening, or conversing in the car
.... designed to help strengthen communication and minimize frustration associated with ongoing caregiver-to-resident and resident-to-resident interaction -- from dining to occupational therapy to small-group activities such as card playing. Ideal for one-on-one conversations during assessment interviews with vulnerable elders. This kit features the Pocketalker® personal amplifier, which provides superior amplification of sounds closest to the listener while reducing background noise. This communication tool is lightweight, portable and easy to use. And it can be used with or without hearing aids. ADA and MDS 3.0 compliant.
The Pocketalker® amplifies sounds closest to the listener while reducing background noise. Ideal for one-on-one conversation, small group and TV listening, or conversing in the car
Free Hearing Aids for the Elderly
Free Hearing Aids for the Elderly a Google search snapshotFree Hearing Aids for the Elderly
seniors.lovetoknow.com › ... › Senior Citizens › Aging and Health
With the cost of many hearing aids in the thousands of dollars, it leaves older people living on a fixed income wondering if free hearing aids for the elderly
Free high quality hearing aids are available for qualified individuals. ...
How to Find Free Hearing ...
Grants for Senior Citizens Needing Hearing Aids | eHow.com
www.ehow.com › Healthcare
How Do I Get Free Hearing Aids?
www.wisegeek.com/how-do-i-get-free-hearing-aids.htm
5 days ago – Hearing aid manufacturers will often provide these models for free to the elderly and children in order to study their effectiveness.
Free Hearing Aids for Pensioners Hearing Aids - Seniors Enquiry Line
www.seniorsenquiryline.com.au/Portals/0/PDF/Hearing.pdf
File Format: PDF/Adobe Acrobat
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free hearing aids for low income seniors
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seniors.lovetoknow.com › ... › Senior Citizens › Aging and Health
With the cost of many hearing aids in the thousands of dollars, it leaves older people living on a fixed income wondering if free hearing aids for the elderly
Free high quality hearing aids are available for qualified individuals. ...
How to Find Free Hearing ...
Grants for Senior Citizens Needing Hearing Aids | eHow.com
www.ehow.com › Healthcare
How Do I Get Free Hearing Aids?
www.wisegeek.com/how-do-i-get-free-hearing-aids.htm
5 days ago – Hearing aid manufacturers will often provide these models for free to the elderly and children in order to study their effectiveness.
Free Hearing Aids for Pensioners Hearing Aids - Seniors Enquiry Line
www.seniorsenquiryline.com.au/Portals/0/PDF/Hearing.pdf
File Format: PDF/Adobe Acrobat
--
similar Google searche phrases;
free hearing aids for low income seniors
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Caring Matters Newsletter www.LAServices.ca
newsletter-september-2012.pdf (application/pdf Object)
“the grey tsunami” has become a buzz phrase for the phenomenal tide of retiring seniors who are living longer than ever and are understandably expecting to be provided for by our universal health care system. Consider the following statistics:
The number of seniors will increase by 43% in the next decade. At current spending levels, the Ontario government will need to devote an annual $24 billion to seniors by 2033 (50% more than the annual expendi-ture today). There are expected to be about 9.8 million senior Canadians by 2036.
Caring Matters is the copyright of Living Assistance Services.
Articles or other materials may be reproduced provided the source is acknowledged.
Compiled & Written by: David Porter & Mary Ellen Tomlinson
Edited by: Claire Valgardson
Designed by: Rafia Hasan
Original Concept by: Kendall Carey
3183 Yonge Street, Toronto, ON M4N 2K9
t. 416.483.0070 f. 416.256.9802
info@LAServices.ca
www.LAServices.ca
“the grey tsunami” has become a buzz phrase for the phenomenal tide of retiring seniors who are living longer than ever and are understandably expecting to be provided for by our universal health care system. Consider the following statistics:
The number of seniors will increase by 43% in the next decade. At current spending levels, the Ontario government will need to devote an annual $24 billion to seniors by 2033 (50% more than the annual expendi-ture today). There are expected to be about 9.8 million senior Canadians by 2036.
Caring Matters is the copyright of Living Assistance Services.
Articles or other materials may be reproduced provided the source is acknowledged.
Compiled & Written by: David Porter & Mary Ellen Tomlinson
Edited by: Claire Valgardson
Designed by: Rafia Hasan
Original Concept by: Kendall Carey
3183 Yonge Street, Toronto, ON M4N 2K9
t. 416.483.0070 f. 416.256.9802
info@LAServices.ca
www.LAServices.ca
Assisted Living: Are You Asking The Right Questions?
Assisted Living: Are You Asking The Right Questions?: Assisted Living: Are You Asking The Right Questions?
Posted by Derek Jones, Certified Senior Advisor on Wed, Sep 19, 2012
Bring this list of questions with you when you visit an assisted living facility to ensure a customized approach when it comes to facility care. The responses of the facility’s representative will help you determine if the staff, care and environment are up to your standards, and help you decide if the facility is good enough to be a new home for Mom.
Posted by Derek Jones, Certified Senior Advisor on Wed, Sep 19, 2012
Bring this list of questions with you when you visit an assisted living facility to ensure a customized approach when it comes to facility care. The responses of the facility’s representative will help you determine if the staff, care and environment are up to your standards, and help you decide if the facility is good enough to be a new home for Mom.
- How far away is it? You’ll want to visit Mom as often as you can, not to mention pick her up for holidays and family events. The closer the facility is to your home, the easier this will be. Also, how close is the facility to other relatives, doctors offices, friends, and shopping?
- How much is the cost, and what does it cover? This is a question you can’t afford not to ask. Read the fine print to look for hidden fees and services that aren’t covered. Costs and payment options vary widely between assisted living facilities, so don’t be afraid to ask questions before you even see a contract.
- What is the staff like? What kind of assistance do they offer to residents? Are the staff licensed and certified? Do they seem friendly and knowledgeable? Do they seem well-attended to? What is the ratio of staff to residents? Try asking the residents if the staff are responsive and how well do they like the staff--it’s often the best way to predict your own loved one’s experience.
- Is the food good? To your mom, this will be one of the most important questions. Visit the dining room during a meal. Ask to see the menu for the week. Does the food look and smell appetizing? Are the portions not too big or too small? Ask the residents how well they like the food--it’s something they’ll be happy to chat about!
- Are there adequate activities available? Do you see a list of activities posted? Are the residents engaged in crafts, games, or group discussions, or do they seem to just be sitting around? What kind of activities are available for patients who are confined to their rooms?
- What are the visiting hours? Do they accommodate your schedule and the schedules of your loved one’s friends and relatives? What if schedules change? Generally, facilities that allow visiting hours seven days a week, for several hours of the day make for the happiest living situation.
- What kind of amenities are offered? Does the facility offer exercise classes and recreational classes? Is there a wellness office? (Your loved one might not need skilled services now, but that could change in the future.) Make sure to find out if these amenities are covered, and if not, what the additional fees are.
- What is the facility’s history of violations? Mistakes and complaints happen. But you want to know that the facility you’re entrusting with your family member hasn’t made any egregious errors. Ask to see the facility’s licensing and violations records.
- Who would you be communicating with? How does the facility handle questions and concerns? Would you be speaking to a front-desk employee, or would you be able to directly contact the facility’s director? If the facility views communication as a priority, your experience will be all the smoother for it.
- Would you live there? Before you commit to a facility, ask yourself this all-important question. Would you feel happy and adequately cared for in the facility? If not, it’s probably not the right choice for your loved one.
Veterans Affairs (VA) has toll-free telephone line for the caregivers of veterans of all eras
The Department of Veterans Affairs (VA) has opened a new, toll-free telephone line for the caregivers of veterans of all eras. The National Caregiver Support Line at 1-855-260-3274 will assist caregivers, Veterans and others seeking caregiver information. The telephone line will be available Monday through Friday. 8 a.m. to 11 p.m., eastern time; and Saturday, 10:30 a.m. to 6 p.m., eastern time. Licensed VA social workers and health technicians will staff the support line. For more information on caring for veterans, visit the VA's Caregiver webpage
Dementia As A Terminal Illness: Understanding Clinical Course Of Disease Leads To Better End-of-life Care | LinkedIn
Dementia As A Terminal Illness: Understanding Clinical Course Of Disease Leads To Better End-of-life Care | LinkedIn: "As the end of life approaches, the pattern in which patients with advanced dementia experience distressing symptoms is similar to patients dying of more commonly recognized terminal conditions, such as cancer."
The study underscores the need to improve the quality of palliative care in nursing homes to reduce the physical suffering of patients with advanced dementia, and to improve communication with their family members.
Dementia As A Terminal Illness: Understanding Clinical Course Of Disease Leads To Better End-of-life Care sciencedaily.com
ScienceDaily (Oct. 20, 2009) —
The study underscores the need to improve the quality of palliative care in nursing homes to reduce the physical suffering of patients with advanced dementia, and to improve communication with their family members.
Dementia As A Terminal Illness: Understanding Clinical Course Of Disease Leads To Better End-of-life Care sciencedaily.com
ScienceDaily (Oct. 20, 2009) —
Social Security Disability - What Are Compassionate Allowances - AARP
Social Security Disability - What Are Compassionate Allowances - AARP: What Are Compassionate Allowances?
165 severe medical conditions will fast-track a disability application
by: Stan Hinden | from: AARP Bulletin | September 6, 2012
Basically, an application is sped up if the person has any of the diseases and conditions that are on a compassionate-allowances list that Social Security maintains. Now numbering 165, these include various forms of cancer, brain injury, heart disease, and immune system and neurological disorders.
More on Social Security
The special processing saves the applicant from waiting months or even years to obtain benefits under the Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI) programs.
An Alzheimer's hearing included testimony from not only medical experts but also family members who recounted the difficulties they faced when their breadwinners developed Alzheimer's disease in their early 50s and were unable to work.
Although the disease generally afflicts older people, the Alzheimer's Association estimates that about 200,000 Americans under the age of 65 have the disease. Early-onset Alzheimer's disease and related dementia's were added to the list in 2010. "Now, individuals who are dealing with the enormous challenges of Alzheimer's won't also have to endure the financial and emotional toll of a long disability decision process," commented Alzheimer's Association Chief Executive Harry Johns.
165 severe medical conditions will fast-track a disability application
by: Stan Hinden | from: AARP Bulletin | September 6, 2012
Basically, an application is sped up if the person has any of the diseases and conditions that are on a compassionate-allowances list that Social Security maintains. Now numbering 165, these include various forms of cancer, brain injury, heart disease, and immune system and neurological disorders.
More on Social Security
The special processing saves the applicant from waiting months or even years to obtain benefits under the Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI) programs.
An Alzheimer's hearing included testimony from not only medical experts but also family members who recounted the difficulties they faced when their breadwinners developed Alzheimer's disease in their early 50s and were unable to work.
Although the disease generally afflicts older people, the Alzheimer's Association estimates that about 200,000 Americans under the age of 65 have the disease. Early-onset Alzheimer's disease and related dementia's were added to the list in 2010. "Now, individuals who are dealing with the enormous challenges of Alzheimer's won't also have to endure the financial and emotional toll of a long disability decision process," commented Alzheimer's Association Chief Executive Harry Johns.
Home Health Aide Shortage Could Affect Future of Senior Care
Home Health Aide Shortage Could Affect Future of Senior Care: Home Health Aide Shortage Could Affect Future of Senior Care
By Sarah Stevenson on September 3, 2012
Tomorrow’s seniors may be on the verge of a home health care crisis, reports the Associated Press. How can home care agencies attract enough workers to serve the growing senior population?
Home Health Aide Assists with Senior Care
Photo credit: Associated Press
With growing numbers of baby boomers getting older, the need for home health care workers is expected to soar over the next decade. But when the median pay for home care aides is comparable to that earned by fast-food workers, and nearly half of home care workers live at or below the poverty line, it may end up being difficult to fill those jobs. And that’s going to be tough for the seniors who rely on health aides to get through the day.
By Sarah Stevenson on September 3, 2012
Tomorrow’s seniors may be on the verge of a home health care crisis, reports the Associated Press. How can home care agencies attract enough workers to serve the growing senior population?
Home Health Aide Assists with Senior Care
Photo credit: Associated Press
With growing numbers of baby boomers getting older, the need for home health care workers is expected to soar over the next decade. But when the median pay for home care aides is comparable to that earned by fast-food workers, and nearly half of home care workers live at or below the poverty line, it may end up being difficult to fill those jobs. And that’s going to be tough for the seniors who rely on health aides to get through the day.
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