{Q}We often talk about the impact of Alzheimer’s on the person with the
disease, on the caregiver, and on “family members.” But couched within
that language is the assumption that we’re only talking about adults.
What about the kids and teens who have a parent, grandparent, or
other relative with Alzheimer’s disease? They are likely scared,
confused, and perhaps angry or sad about the situation. And don’t forget
the kids and teens who have a friend who is dealing with this
challenge, which may bring up feelings of helplessness about how to be
supportive or what to say{EQ}
{Q}If you are a parent with a child or teenager who is struggling to
understand or cope with Alzheimer’s, you may have wondered if there are
any good resources out there that you can trust. Fortunately, there are.
Here are six ways to help kids and teens learn more about Alzheimer’s and develop coping strategies. (Note: I was not asked to write about any of these resources, and I am not receiving any compensation for mentioning any of them.) {EQ}
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Dave Mainwaring's Knowledge Network. Includes a more inclusive newsbasket: Mainzone Knowledge Network http://mainzoneknowledgenetwork.blogspot.com/
A newsbasket is on-line Internet publication containing comprehensive aggregated collections of information.
Dementia Behavior Can Seem Like Manipulation - AgingCare.com
Dementia Behavior Can Seem Like Manipulation - AgingCare.com:
"Sometimes caregivers assume that (their loved ones) are being manipulative because they just can't believe their behavior," she explains. But in reality, people with dementia aren't able to think through the process of manipulation.
"Sometimes caregivers assume that (their loved ones) are being manipulative because they just can't believe their behavior," she explains. But in reality, people with dementia aren't able to think through the process of manipulation.
Alzheimer's {A CareGiver's compilation} Goods and Services Blog
Alzheimer's {A CareGiver's compilation} Goods and Services | Things To Do Together, Safety Devices & related Equipment, On-line Discussions – Forums and support sites, caregivers' Organizations, Associations | Government: Local, State, Federal, International; Medical Centers, Hospitals, Schools and University's
Aging in Place, Home Modifications, Retrofitting: Can Be Foreign to Many | Endless Legacy
Aging in Place, Home Modifications, Retrofitting: Can Be Foreign to Many | Endless Legacy: Aging in Place, Home Modifications, Retrofitting: Can Be Foreign to Many
By Rhonda Caudell on March 6, 2014 in Caregiving, General Information
Aging in Place is mostly referred to as when someone desires to stay in their existing home as they age, along with a desire to remain there until the end of their life. To determine if this is possible allowing for safety and continued function to the highest level is the challenge.
By Rhonda Caudell on March 6, 2014 in Caregiving, General Information
Aging in Place is mostly referred to as when someone desires to stay in their existing home as they age, along with a desire to remain there until the end of their life. To determine if this is possible allowing for safety and continued function to the highest level is the challenge.
Individual's HEALTH ASSESSMENT for HEALTH CARE PROVIDER
Individual's HEALTH ASSESSMENT for
HEALTH CARE PROVIDER
TO BE COMPLETED BY HEALTH CARE PROVIDER
Individual's Name and DOB:
Known Allergies: Height: Weight:
Medical history and diagnoses:
Physical or sensory limitations:
Cognitive or behavioral status:
Nursing/treatment/therapy service
requirements:
Special precautions:
A. To what extent does the individual
need supervision or
assistance with the following?
S=Needs Supervision I= Independent A=
Needs Assistance
Indicate the extent to which the
individuals is able to
perform each of the activities of daily
living.
Ambulation
Bathing
Dressing
Eating
Self Care (grooming)
Toileting
Transferring
Special Diet Instructions
Regular Calorie Controlled No Added
Salt Low Fat/Low
Cholesterol
Does the individual have any of the
following
conditions/requirements? Please include
an explanation
- 1. A communicable disease, which could be transmitted to
- others
- 2. Bedridden?
- 3. Any stage 2, 3, or 4 pressure sores?
- Pose a danger to self or others
- Require 24-hour nursing or psychiatric care?'
- In your opinion,
- can this individual's needs be met by this caregiver
ABILITY TO PERFORM SELF-CARE TASKS:
Preparing Meals
Shopping
Making and Receiving Phone Calls
Handling Personal Affairs
Handling Financial Affairs
GENERAL OVERSIGHT:
Observing Well-being
Observing Whereabouts
Reminders for Important Tasks
ADDITIONAL COMMENTS/OBSERVATIONS (Use
additional page if
necessary):
list all current medications prescribed
below
MEDICATION DOSAGE DIRECTIONS FOR
USE ROUTE
1.
2.
Does the individual need help with
taking his or her
medications
=
PLEASE RETURN TO: CARE PROVIDER NAME:
CARE PROVIDER ADDRESS:
TELEPHONE NUMBER: CONTACT PERSON:
Advice from Caregivers when asked “What have you learned from your journey that you think every caregiver should know?”
ALZ Connected - Alzheimer's Association: This is a compilation of the advice from previous threads. dj okay has eliminated the replies that did not relate directly to the subject.
Advice from Caregivers when asked “What have you learned from your journey that you think every caregiver should know?” DJ attempted to categorize their responses. These are their words. Multiple statements in parentheses are further comments from subsequent responders.
Advice from Caregivers when asked “What have you learned from your journey that you think every caregiver should know?” DJ attempted to categorize their responses. These are their words. Multiple statements in parentheses are further comments from subsequent responders.
Book list, this information and all links were active 8/20/2013
"A
Common Sense Guide to Alzheimer's Care Kisses for Elizabeth is
written for both family and professional caregivers of people with
Alzheimer's disease and other dementia’s. It is a practical
resource for anyone experiencing difficulty with significant
behavioral issues but is also helpful to caregivers who simply want
to provide the best possible care.
The
author has developed 15 common sense guidelines which address a wide
variety of concerns by helping caregivers to solve problems or even
prevent them. The guidelines also address negative behaviors such as
wandering, combativeness, paranoia and sundowning. The book explains
what dementia is, how it affects people who suffer from it and why
these behaviors occur.
Stephanie
D Zeman MSN RN has included over 40 true heartwarming stories about
her patients with dementia and ways in which the guidelines were
applied to help resolve their problems and enhance the individuals
quality of life
Since
one of the best ways to learn is by example, Stephanie D Zeman MSN RN
has included over 40 true heartwarming stories about her patients
with dementia and ways in which the guidelines were applied to help
resolve their problems and enhance the individuals quality of life."
FYI ,,,,,,,,,,,,,,,,,,,,,,
Stephanie
is one of my on-line friends.
We are both active on
http://www.alzconnected.org/discussion.aspx
Stephanie
on abuse: READ TODAY
http://www.alzconnected.org/discussion.aspx?tid=2147495522&g=posts&t=2147495517
Another
excellent book I quote from often:
Jolene
Brackey "Creating Moments of Joy" Perdue University Press.
Stephanie
offerred this list, his information and all links are active
8/20/2013
This
is a list of links about information you will need. Most helpful for
you right now will be "Understanding the dementia experience"
which will give you an idea of what your LO is going through; and
"Communication skills" Which will help you to
communicate in ways which will avoid or decrease your LO
negative behaviors.
Understandingthe dementia experience:
https://www.smashwords.com/books/view/210580
Anosognosiaexplains why dementia patients are unaware of their problem
http://alzonline.phhp.ufl.edu/en/reading/Anosognosia.pdf
Communicationtechniques for dementia caregivers:
http://www.alzconnected.org/discussion.aspx?g=posts&t=2147497924
Guideto diagnosing and treating dementia: What your doctor should do:http://dementia.americangeriatrics.org/
Bathingand Showering
http://www.alzconnected.org/discussion.aspx?g=posts&t=2147491802
http://www.alzheimers.org.uk/site/scripts/documents_info.php?documentID=138
http://www.disabled-world.com/health/aging/uti.php
Pickingat skin/scabs: http://www.alzcompend.info/?p=233
http://prc.coh.org/PainNOA/Abbey_Tool.pdf
http://www.alzconnected.org/discussion.aspx?g=posts&t=2147489263
Caregiverkitchen http://caregiver.com/kitchen/index.htm
What causes olfactory hallucinations (phantosmia)? smelling non existent oders
Mayo Clinic
Answers from Jerry W. Swanson, M.D.The odors detected in phantosmia vary from person to person and may be foul or pleasant. They can occur in one or both nostrils and usually can't be masked by food.
Phantosmia most often occurs as a result of a head injury or upper respiratory infection. It can also be caused by temporal lobe seizures, sinusitis, brain tumors, migraine, Parkinson's disease and stroke.
Because phantosmia can in rare cases be an indication of a serious underlying disorder, consult your doctor if you experience such symptoms.
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