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Talking with a person with Alzheimer's guidelines: five basic ones


Marie Marley is the award-winning author of Come Back Early Today: A Memoir of Love, Alzheimer's and Joy. Her website  contains a wealth of information for Alzheimer's caregivers.
www.ComeBackEarlyToday.com

When relating to a person with Alzheimer's there are many guidelines to follow. 

five basic ones:
1) Don't tell them they are wrong about something,
2) Don't argue with them,
3) Don't ask if they remember something,
4) Don't remind them that their spouse, parent or other loved one is dead 
5) Don't bring up topics that may upset them.


Marie Marley author of Come Back Early Today


Dementia and Cognitive Impairment Diagnosis and Treatment Guideline

Dementia and Cognitive Impairment Diagnosis and ...
www.ghc.org/all-sites/guidelines/dementia.pdf
Group Health Cooperative
Dementia and Cognitive Impairment Diagnosis and Treatment Guideline. 1 ..... Guidelines are systematically developed statements to assist patients and providers in .... new and challenging mental activities, such as a language or musical instrument. .... Many different tools are available for assessing cognitive function.
 
 About Group Health
Group Health Cooperative is a member-governed, nonprofit health care system that coordinates care and coverage. Founded in 1947 and based in Seattle, Wash., Group Health and its subsidiary health carriers, Group Health Options, Inc. and KPS Health Plans, serve more than 600,000 residents of Washington and North Idaho.

"Care Transitions for the Home Care Industry." Ankota software

Chronic Care Management Services:
Here's the deal...  Physicians are starting to be incentivized (and penalized) for their performance with respect to their chronic patients, but there's a reimbursement associated with it. The reimbursement is for patients with two or more chronic conditions in a practice with a certified EMR (Electronic Medical Record) system.  The reimbursement has two levels. The first level, reimbursed at $42/month, requires a 20 minute check-in (e.g., on the phone) with the patient.  The second, reimbursed at almost $100, requires telehealth.

Home care agencies can put a program in place where your best aides are paid $10 for a 20 minute check-in call. If you charge $32 for this service (leaving a $10 margin for the referring practice) and allocate some of the revenue to your staff nurses and for software, you can provide a great service  and make a reasonable margin. Care Transitions Services: You can provide services to help transition patients from hospital to home.  Most hospitals are now being penalized for excessive readmissions   These hospitals can use your help and there are many benefits to your agency.  We have a new white paper  to teach you about the numerous benefits that your home care agency can achieve.
 At Ankota, we love providing home care software, telephony, care plans, scheduling, billing, payroll and all the other basics, but we really love that we can enable your agency to play a broader role in the future oh health care.  We can make a difference together.  Please download our newest free white paper "Why Care Transitions is the Next Big Thing for the Home Care Industry."
About Ankota Ankota provides software to improve the delivery of care outside the hospital, focusing on efficiency and care coordination.

Hiring Home Care Workers: Why Work through an Agency? By Rona S. Bartelstone,

Hiring Private Duty Home Care Workers: Why Work through an Agency

Quoted:
One of the greatest long-term needs of older adults and those with
chronic illnesses is for in-home, custodial care services. These
workers are often referred to as home health aides, certified nursing
assistants and custodial care workers. These in-home workers make it
possible for people with functional limitations to remain at home in a
comfortable, familiar environment. Home health aides (as we will refer
to this class of workers) provide a wide range of assistance with
activities of daily living (ADLs), such as bathing, dressing, grooming,
assisting with ambulation or transferring, toileting, feeding and
providing medication reminders. In addition, home health aides help
with what professionals call, instrumental activities of daily living
(IADLs), such as shopping, meal preparation, making medical
appointments, transportation, laundry and companionship.

While it is true that most people would prefer to remain in their
own homes, there are circumstances in which care in a residential or
nursing facility is more appropriate and more cost-effective. For
example, the individual who needs round the clock care because of
treatments or behavioral issues will find a nursing facility or
residential setting likely to be more affordable.

The biggest proportion of people who utilize home health aide services are those
who need several hours per day of assistance, as opposed to those who need full-time care.

Due to the cost and the increasing shortage of home health
aides, many families seeking to hire in-home staff turn to private
individuals rather than working through an agency. While at first
glance this seems reasonable, it can also cause numerous problems and create unexpected liabilities for the family, who becomes the employer.

Great Big List of Caregiver Blogs | Caregiver's Corner July 14, 2010

Great Big List of Caregiver Blogs    

One of the best ways for a caregiver to find answers, reassurance,
and understanding is to connect with other caregivers. To help with
that, here is a list of blogs run by caregivers. If you know of any
blogs that should be added to this list, let us know!

Top 10 Codes You Aren’t Meant To Know - Listverse

Top 10 Codes You Aren’t Meant To Know - Listverse
Stores, hospitals, entertainment venues, and other places where the public are together in large numbers, use secret codes to pass information between store employees. These are meant to be a secret as they don’t want to alarm the non-staff members or alert someone (like a thief) to the fact that they have been noticed. Many stores have their own codes – for example WalMart, but there are a number that are nearly universal in application. This is a list of ten secret codes that may prove useful to you in future, or at least dispel any curiosity you may have if you hear them.

Strategies to Protect Your Money from Medicaid - AgingCare.com

AgingCare.com is not simply a website, but a community of caregivers facing the challenge of caring for an elderly loved one.
They provide a comfortable meeting place for the free exchange of ideas with knowledgeable professionals, responsive experts, and people just like you. They provide an excellent knowledge network, use it.

The following is extracted from AgingCare.com
{quote}
Too few older adults know and understand their rights and options regarding health care, particularly long-term care, which, to quote the New York Court of Appeals, is "ruinously expensive."

A Caregiver Agreement is an excellent strategy in many cases where extra services are needed or desired that would not be covered by Medicaid, and are outside the scope of what a nursing facility or home care attendants would provide.

The caregiver can be a son, a daughter or other family member, a friend, a geriatric care manager or a home care agency. The services can be paid for in advance, and the payment will then reduce countable resources, helping the person in need of care gain Medicaid eligibility. A family member can render these services, providing income for that person (who may have given up a job or taken time off from work), and reducing conflict with other family members who are unable or unwilling to help out.

If the caregiver is to be paid in advance, the keys to creating an agreement that will be accepted by Medicaid are:

    The contract must specifically define the services provided and hours to be worked by the caregiver.
    The lump sum payment must be calculated using a reasonable life expectancy and legitimate market rates for the services.
    A daily log of actual services rendered and hours worked must be maintained, along with written invoices.
    Upon the death of the patient, any unearned amounts must be paid to Medicaid, up to the amount that Medicaid paid on behalf of the patient.

Spousal Transfers and Spousal Refusal

An important feature of the Medicaid laws is that transfers between spouses are permitted, are not subject to the "look back," and thus do not result in any penalty. In the case of a married couple, one of the basic strategies is to transfer any assets that are in the name of the spouse who needs care to the name of the well spouse (also called the "community spouse" where the spouse who needs care is in a nursing home).

New York and some other states permit something called "spousal refusal." In these scenarios, the well (or community) spouse will refuse to provide support for the spouse who needs care.As a result, the spouse who needs care will be immediately eligible for Medicaid, and will receive services.

Once Medicaid provides services, it has the right to seek contribution from the well spouse. In some cases, however, Medicaid does not pursue its rights, and in other cases it is willing to settle at a discount. At a minimum, the well spouse will receive a significant benefit because any reimbursement to Medicaid will be at Medicaid's discounted rates, rather than at the private pay rates that the providers would have charged.

Unfortunately, the majority of states are "spousal share" states that do not permit spousal refusal. In these states, the resources of both spouses are counted towards the Medicaid eligibility amount, and the above strategy is therefore ineffective.

Elder Law attorneys are able to work within the Medicaid laws to produce favorable outcomes for their clients. Bear in mind that every case has its unique facts, and these strategies might or might not be the top five for you, given your circumstances. In any case, it's hardly ever too late to develop an effective strategy to obtain benefits, and protect at least some of your assets or income at the same time.

David Cutner is a former family caregiver and co-founder of Lamson & Cutner, a boutique elder law firm in Manhattan, known for its successful strategic planning and insights into the issues of today's elder law maze.

{End of Quoting}

I have no connection with  David Cutner the following contact information is my thanks to him.

Lamson & Cutner, P.C.
9 East 40th Street
New York, New York 10016
 
Contact Information:
Phone: (888) 618-3701

Fax: (212) 486-1600 Web Site: www.elder-law-lawyer.com
    BLOG The Best Elder Law Blog
   


800AgeInfo - Information on Programs - Caregiver Support Page

800AgeInfo - Information on Programs - Caregiver Support Page

Caregiver Support


(caring for an individual)

The Massachusetts Family Caregiver Support Program (MFCSP) is
administered through a partnership with local Area Agencies on Aging
(AAAs) and Aging Service Access Points (ASAPs). MFCSP provides family
caregivers guidance, support, and attention that often is unavailable or
overlooked.  Caregivers receive individual attention to:


  • discuss their caregiving situation
  • increase knowledge of and access to resources
  • make informed decisions and solve problems related to their caregiver role
  • increase their own personal well-being including reduced stress

Family caregivers are individuals who:

  • Care for a spouse, parent, other relative or friend who is age 60 or older, or who has Alzheimer’s disease.
  • Are grandparents age 55 or older who are caring for grandchildren who are 18 years of age or younger, or who are disabled.
  • Are over the age of 55 and caring for a disabled individual who is not their child.
Caring for a loved one can be overwhelming and at times stressful,
even isolating; yet it can be meaningful and rewarding as well.  It is
critical that caregivers are aware of available services. Through the
MFCSP compassionate and knowledgeable professionals work directly with
caregivers offering a range of services that may include:


  • One-on-one Counseling
  • Family Meeting
  • In-home Assessment
  • In-home Services
  • Respite (a break for caregivers)
  • Nutrition Services
  • Transportation Services
  • Caregiver Training
  • Support Groups
  • Supplemental Services (such as assistive devices, emergency response system)
  • Financial Counseling
  • Legal Referral

Comfort Care DNR protocol

When a patient is in a non-hospital setting, Emergency Medical Technicians (EMTs) are required to provide emergency medical care and to transport patients to appropriate health care facilities. Emergency Medical Services (EMS) personnel are required by law to provide treatment to the fullest extent possible, subject to their level of training.
Comfort Care DNR Order Verification Protocol (Comfort and Care DNR)
  1. The Comfort Care DNR is designed to allow EMTs and first responders to honor a DNR order in an out-of-hospital setting.
  2. Before 1999, when Massachusetts implemented its Comfort Care DNR protocol, there was no mechanism to enable EMT’s and other first responders to recognize DNR orders in a non-hospital setting. So EMT personnel were always obligated to perform full resuscitation measures when they encountered a patient unable to convey directions regarding medical treatment.
  3. The Comfort Care DNR protocol provides for a statewide, uniform DNR verification protocol.
  4. The purpose of the Comfort Care DNR is to: (a) provide a verification of DNR orders to enable EMTs and first responders to honor DNR orders, (b) clarify the role and responsibilities of EMTs and first responders at the scene and/or during transport of patients who have a valid current DNR order, (c) avoid resuscitation of patients who have a current and valid DNR, (d) provide for palliative/comfort care measures for patients with a current Comfort Care DNR order verification form.
  5. Comfort Care DNR order verification forms must be completed and signed by the patient’s physician, authorized Physician’s Assistant or Nurse Practitioner.
  6. The patient must post the Comfort Care DNR where any EMT or first responder can easily find it. (Usually the patient’s refrigerator, or taped to the patients bedroom door. The Department of Public Health stopped issuing Comfort Care DNR bracelets in 2007, but the Department’s approved form contains bracelet inserts that can be used in generic wrist bracelets.
  7. The Comfort Care DNR Order Verification form can be accessed by anyone, in downloadable format from the Massachusetts Department of Public Health/Office of Emergency Medical Services website, at: http://www.mass.gov/eohhs/gov/departments/dph/programs/hcq/oems/comfort-care/public-health-oems-comfort-care-verification.html. But the form must be fully completed and signed by the attending physician, authorized nurse practitioner or authorized physician assistant as proscribed by the regulations.