A-Z of Activity
Ideas In the following pages you will find a catalogue of activity ideas for you to use just click on the image and away you go
The Caregiver’s Bill of Rights | Alzheimer's Reading Room
The Caregiver’s Bill of Rights | Alzheimer's Reading Room: Whether they realize it or not caregivers do have rights – lots of them.
This list has been circulating on the internet for a long time and is attributed to various persons.
This version was taken from www.caregivers.utah.gov, where it is attributed to Jo Horne.
Whether you have seen it previously or not, it is always worth repeating and sharing
This list has been circulating on the internet for a long time and is attributed to various persons.
This version was taken from www.caregivers.utah.gov, where it is attributed to Jo Horne.
Whether you have seen it previously or not, it is always worth repeating and sharing
- To take care of myself. Caregiving is not an act of selfishness. It will give me the capability of taking better care of my loved one.
- To seek help from others even though my loved ones may object. Only I can recognize the limits of my endurance and strength.
- To maintain facets of my life that do not include the person I care for, just as I would if he or she were healthy. I know that I do everything that I reasonably can for this person, and I have the right to do some things just for myself.
- To get angry, be depressed, and express other difficult feelings occasionally.
- To reject any attempts by my loved one (either conscious or unconscious) to manipulate me through guilt, and/or depression.
- To receive consideration, affection, forgiveness, and acceptance for what I do, from my loved ones, for as long as I offer these qualities in return.
- To take pride in what I am accomplishing and to applaud the courage it has sometimes taken to meet the needs of my loved one.
- To protect my individuality and my right to make a life for myself that will sustain me in the time when my loved one no longer needs my full-time help.
- To expect and demand that as new strides are made in finding resources to aid physically- and mentally-impaired persons in our country, similar strides will be made towards aiding and supporting caregivers.
Accepting Alzheimers, Coping in Alzheimers World | Alzheimer's Reading Room
Accepting Alzheimers, Coping in Alzheimers World | Alzheimer's Reading Room: Accepting Alzheimers, Coping in Alzheimers World
Did you ever wonder why most Alzheimer's patients stick like glue to their caregiver? Call out their name when they can't see them? Want to know where you are when they can't see you?
By Bob DeMarco
Alzheimer's Reading Room
Accepting Alzheimer's Coping
When a person has Alzheimer's disease or another type of dementia they are often difficult to understand. The behaviors they express are often difficult to accept.
It be be very hard to deal with a person suffering from Alzheimer's disease.
It is hard to understand that a person can't remember. Harder to accept that when they can't remember, they will do things that are completely foreign to your frame of reference.
Each of us has emotions and feelings. Alzheimer's has a way of bringing out the worst of these feelings and emotions.
The challenge -- learning to deal with a person living with Alzheimer's on their own terms. Learning to deal with Alzheimer's disease.
http://tinyurl.com/buqqwxz
Many caregivers come to the conclusion that the person living with Alzheimer's is not the person they knew. Knew most or all of their life.
Is it possible to deal with a stranger? Is this supposed stranger likable?
Can you like someone that continually makes you angry, frustrated and sad?
See what is happening? You make the situation about you. This is not the person I knew. I knew.
But Alzheimer's caregiving is not only about you. It is also about the person living with the disease.
The "live -R" cannot help or change the way they are acting. But, you can change the way you are acting or feeling.
Sooner or later you have to start by reminding yourself this is my Mom, this is my Dad, this is my Husband, this is my Wife.
Here is something I learned on the Alzheimer's Reading Room. Alzheimer's caregivers want, try hard, to give the person living with AD the highest quality of life possible.
Striving for this goal is difficult. Near the beginning, it seems impossible for most of us.
Did you ever wonder why most Alzheimer's patients stick like glue to their caregiver? Call out their name when they can't see them? Want to know where you are when they can't see you?
By Bob DeMarco
Alzheimer's Reading Room
Accepting Alzheimer's Coping
When a person has Alzheimer's disease or another type of dementia they are often difficult to understand. The behaviors they express are often difficult to accept.
It be be very hard to deal with a person suffering from Alzheimer's disease.
It is hard to understand that a person can't remember. Harder to accept that when they can't remember, they will do things that are completely foreign to your frame of reference.
Each of us has emotions and feelings. Alzheimer's has a way of bringing out the worst of these feelings and emotions.
The challenge -- learning to deal with a person living with Alzheimer's on their own terms. Learning to deal with Alzheimer's disease.
http://tinyurl.com/buqqwxz
Many caregivers come to the conclusion that the person living with Alzheimer's is not the person they knew. Knew most or all of their life.
Is it possible to deal with a stranger? Is this supposed stranger likable?
Can you like someone that continually makes you angry, frustrated and sad?
See what is happening? You make the situation about you. This is not the person I knew. I knew.
But Alzheimer's caregiving is not only about you. It is also about the person living with the disease.
The "live -R" cannot help or change the way they are acting. But, you can change the way you are acting or feeling.
Sooner or later you have to start by reminding yourself this is my Mom, this is my Dad, this is my Husband, this is my Wife.
Here is something I learned on the Alzheimer's Reading Room. Alzheimer's caregivers want, try hard, to give the person living with AD the highest quality of life possible.
Striving for this goal is difficult. Near the beginning, it seems impossible for most of us.
Carers to get a break as new service launched - Local Headlines - Deeside Piper and Herald
Carers to get a break as new service launched - Local Headlines - Deeside Piper and Herald: “Respite is essential. We recently got access to the Creative Breaks Fund through the Scottish Government and the Change Fund. It can be used flexibly to help carers have a short holiday, pay for leisure or gardening equipment or enjoy a bit of pampering. It can be a chance to have a break from their caring role or spend quality time with the person they care for. It means they can rest and recharge their batteries as well as trying a new skill or picking up an old hobby. I’d urge any local carers to get in touch as soon as possible to get support in applying for this funding.”
“For short-term respite we’re working in partnership with Alzheimer Scotland to offer relaxation sessions for carers at Victory Hall in Aboyne.”
“For short-term respite we’re working in partnership with Alzheimer Scotland to offer relaxation sessions for carers at Victory Hall in Aboyne.”
Defining Non-Medical Home Care for Seniors | In Home Care for Elders
Defining Non-Medical Home Care for Seniors | In Home Care for Elders
Home Care is a service that assists those in need to continue living and celebrating life from the comfort of their own home. Home care is a model of care that includes both professional and informal support networks that include family, neighbors, and friends. To remain independent, these individuals construct your ‘Care Team’ which work together to meet your goals and expected outcomes. At some point, you may determine that a professional Home Care company is needed to join your Care Team.
Considering your options
When selecting a Home Care services company, you will have many questions. The first thing to understand is that Home Care services vary from facility-based options. Chances are if you’re researching senior care you’ve heard a lot about senior housing options such as a nursing home, assisted living community, adult day care, retirement community, or continuing care retirement community (or CCRC). These elderly care options all have unique benefits, however, at home care is often the preferred choice for seniors who wish to age in place at their own home. Your financial, social, and health situation will often determine which environment you choose.
Choosing the right care for loved ones is an important decision and it starts with knowing when to call. Professional care givers can assist your loved one in a number of important ways
Paying for In Home Care | Affordable Quality Home Care: Paying for Home CareWhen it comes time to find non-medical, in-home care for your loved ones, paying for this important service is probably the last thing on your mind.
Zip Door when all you need to seal is the doorway
Zip Door is a great way when all you need to seal is the doorway. One person can install it in under a minute. It's also great for residential jobs like kitchen and bath remodeling, or where renovation will disturb lead paint.
For doors up to 4' x 8'
Flame retardant Made from 4 mil plastic sheeting
Two heavy duty zippers pre-installed
Marie Marley: Alzheimer's and the Devil Called Denial
Marie Marley: Alzheimer's and the Devil Called Denial
But people noticing consistent signs of confusion and forgetfulness in a loved one should not wait for the 'defining incident.' One early action to take is to review the Alzheimer's Association's 10 Signs of Dementia and ask yourself whether your loved one is showing one or more of them:
1. Memory loss that disrupts daily life
2. Challenges in planning or solving problems
3. Difficulty completing familiar tasks at home, at work and at leisure
4. Confusion with time or place
5. Difficulty understanding visual images and spatial relationships
6. New problems with words in speaking or writing
7. Losing things and the inability to retrace steps
8. Decreased or poor judgment
9. Withdrawal from work or social activities
10. Changes in mood and personality
The Alzheimer's Association website has additional information about each of these items and explains how they differ from things 'normal people' do from time to time
But people noticing consistent signs of confusion and forgetfulness in a loved one should not wait for the 'defining incident.' One early action to take is to review the Alzheimer's Association's 10 Signs of Dementia and ask yourself whether your loved one is showing one or more of them:
1. Memory loss that disrupts daily life
2. Challenges in planning or solving problems
3. Difficulty completing familiar tasks at home, at work and at leisure
4. Confusion with time or place
5. Difficulty understanding visual images and spatial relationships
6. New problems with words in speaking or writing
7. Losing things and the inability to retrace steps
8. Decreased or poor judgment
9. Withdrawal from work or social activities
10. Changes in mood and personality
The Alzheimer's Association website has additional information about each of these items and explains how they differ from things 'normal people' do from time to time
Hiring an In-Home Caregiver
Hiring an In-Home Caregiver
For older adults, in-home non-medical care might be the key to independence. However, the quality of care depends on the quality of the caregiver. When looking for in-home care, finding the best service can be a challenge. This article offers suggestions on what to look for when hiring a caregiver.
What is In-Home Care?
In-home caregivers provide assistance with activities of daily living (ADL) such as meal preparation, dressing, grooming, medication monitoring, transportation and light housekeeping. These services should not be mistaken for home health services, which offer skilled, medical services by licensed professionals such as nurses and therapists. While in-home caregivers may be trained and/ or certified, they focus mostly on activities of daily living and are not required to perform complex health care related tasks. Programs such as Medicare, or Medicaid (Medi-cal) cover Home Health Services, but do not usually cover non-medical services. There are some long-term care insurance policies that cover non-medical in-home care services. Review your policy to determine whether in-home care is covered by your insurance.
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What is In-Home Care?
In-home caregivers provide assistance with activities of daily living (ADL) such as meal preparation, dressing, grooming, medication monitoring, transportation and light housekeeping. These services should not be mistaken for home health services, which offer skilled, medical services by licensed professionals such as nurses and therapists. While in-home caregivers may be trained and/ or certified, they focus mostly on activities of daily living and are not required to perform complex health care related tasks. Programs such as Medicare, or Medicaid (Medi-cal) cover Home Health Services, but do not usually cover non-medical services. There are some long-term care insurance policies that cover non-medical in-home care services. Review your policy to determine whether in-home care is covered by your insurance.
Alzheimer’s Disease and Dementia Knows No Borders Video | Alzheimer's Speaks Blog
Alzheimer’s Speaks provides a variety of platforms and forums to educate and shift our dementia care culture for professional, family caregivers and the public at large. Alzheimer’s Speaks believes collaborative and alternative approaches push society forward in search for answers and that working together and sharing knowledge is the best way to win the battle against this disease. Alzheimer’s Speaks believes it is time to shift caregiving from crisis to comfort by removing the fear and providing economical services, tools, concepts and products to those in need. For more information please visit and learn about how you and your organization can become Dementia Friendly.
Patient Self-Determination Act - Wikipedia, the free encyclopedia
Patient Self-Determination Act - Wikipedia, the free encyclopedia
The requirements of the PSDA are as follows:
The requirements of the PSDA are as follows:
- Patients are given written notice upon admission to the health care facility of their decision-making rights, and policies regarding advance health care directives in their state and in the institution to which they have been admitted. Patient rights include:
- The right to facilitate their own health care decisions
- The right to accept or refuse medical treatment
- The right to make an advance health care directive
- Facilities must inquire as to the whether the patient already has an advance health care directive, and make note of this in their medical records.
- Facilities must provide education to their staff and affiliates about advance health care directives.
- Health care providers are not allowed to discriminately admit or treat patients based on whether or not they have an advance health care directive.
[edit] Purpose
The purpose of the Patient Self-Determination Act was to inform patients of their rights regarding decisions toward their own medical care, and ensure that these rights are communicated by the health care provider. Specifically, the rights ensured are those of the patient to dictate their future care (by means such as living will or power of attorney), should they become incapacitated.[edit] References
- ^ Health Care Advance Directives - What is the Patient Self-Determination Act?. American Bar Association.
- ^ What is the Patient Self-Determination Act?. Legal HelpMate.
- ^ Advance Care Planning in Health Care Reform Legislation. National Hospice and Paliative Care Organization.
- ^ Robert Pear (December 25, 2010). "Obama Returns to End-of-Life Plan That Caused Stir". The New York Times.
- ^ Robert Pear (January 4, 2011). "U.S. Alters Rule on Paying for End-of-Life Planning". The New York Times.
[edit] Further reading
- Yates JL, Glick HR (1997). "The failed Patient Self-Determination Act and policy alternatives for the right to die". J Aging Soc Policy 9 (4): 29–50. PMID 10186890.
- Leahman D (2004). "Why the Patient Self-Determination Act has failed". N C Med J 65 (4): 249–51. PMID 15481498.
[edit] External links
- *Thaddeus Mason Pope (1999). "THE MALADAPTATION OF MIRANDA TO ADVANCE DIRECTIVES: A CRITIQUE OF THE PATIENT SELF DETERMINATION ACT". HEALTH MATRIX 9 (1): 139–202. http://papers.ssrn.com/sol3/papers.cfm?abstract_id=174749.
- American Cancer Society article
- THE REQUIREMENTS OF THE PATIENT SELF-DETERMINATION by Lawrence P. Ulrich, Ph.D.
- Kring DL (2007). "The Patient Self-determination Act: has it reached the end of its life?". JONAS Healthc Law Ethics Regul 9 (4): 125–31, quiz 132–3. doi:10.1097/01.NHL.0000300767.91800.17. PMID 18043329. http://www.nursingcenter.com/library/journalarticle.asp?article_id=755746.
- Walerius T, Hill PD, Anderson MA (2009). "Nurses' knowledge of Advance Directives, Patient Self-determination Act, and Illinois Advance Directive Law". Clin Nurse Spec 23 (6): 316–20. doi:10.1097/NUR.0b013e3181be3273. PMID 19858904. http://www.nursingcenter.com/library/JournalArticle.asp?Article_ID=940924.
Article: OBRA regulations and chemical restraints. (Omnibus Budget ...
www.accessmylibrary.com › ... › November 1990 articlesCached - SimilarShare
Nov 1, 1990 – Free article about 'OBRA regulations and chemical restraints. (Omnibus Budget Reconciliation Act of 1987)' at AccessMyLibrary.com. ... Nursing Homes and Senior Citizen Care articles > November 1990 articles.Shared on Google+. View the post.
Avoiding the Urinary Tract Infection | Alzheimer's Reading Room By Carole B. Larkin
Avoiding the Urinary Tract Infection | Alzheimer's Reading Room: Here are a few tips/tricks that may help you avoid the dreaded UTI -- Urinary Tract Infection.
By Carole B. Larkin
Alzheimer's Reading Room
First, I am not a doctor, nor am I a nurse. I am an experienced Geriatric Care Manager and a woman. Over the years, I had more conversations with urologists and their nurses about urinary tract infections (UTIs) than I care to remember.
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The biggest cause of UTI’s is dehydration! It’s ironic, because the thought process of many older adults is,
By Carole B. Larkin
Alzheimer's Reading Room
First, I am not a doctor, nor am I a nurse. I am an experienced Geriatric Care Manager and a woman. Over the years, I had more conversations with urologists and their nurses about urinary tract infections (UTIs) than I care to remember.
<><><><>
The biggest cause of UTI’s is dehydration! It’s ironic, because the thought process of many older adults is,
“if I don’t drink much, then I won’t have to go to the bathroom very often, which is better because it’s a pain in the butt (sorry again!) to get up, get over to the bathroom, partially disrobe, and then go to the bathroom and then do it all in reverse, before I get to relax in my chair or bed again.”So they don’t drink fluids, which of course leads to dehydration, the leading cause of UTI’s and incontinence (at least in early and midstage Alzheimer’s.) So to prevent UTI’s you must be persistent in having mom drink fluids. Water is best, but among one of the hardest things to get some people to drink, so flavor it with Kool-Aid or something similar. I can’t tell you how many times my clients have ended up with UTI’s just because no one insisted that they drink!
A Family Caregiver’s Elevator Speech
A Family Caregiver’s Elevator Speech: “I am Elizabeth Chomsky’s daughter. She is a person living with dementia, but loved to paint, ice skate and still can have a wicked sense of humor. I want to be informed of any change in her condition, medications or situation since I am her primary caregiver, loving daughter and fearless caregiver.” (Or something like that.)
Gary Barg
Editor-in-Chief
gary@caregiver.com
Sign up for our FREE Fearless Caregiver Weekly Newsletter, your guide for the best caregiver support.
Gary Barg
Editor-in-Chief
gary@caregiver.com
Sign up for our FREE Fearless Caregiver Weekly Newsletter, your guide for the best caregiver support.
- Specialized Care Co, Inc.for individuals who need dental care
- Specialized Care Co, Inc.
Specialized Care Co, Inc. designs, markets and sells products that facilitate the delivery of oral health services. Our products include Rainbow Stabilizing Systems (some people refer to these generically as Papoose Boards), Airway Positioners and Cushions for knee-to-knee exams; Open Wide mouth props (bite blocks) and mouth rests; Stay N Place pillows for the dental chair, chair liners and booster seats; Surround 3-headed toothbrushes, and training DVDs for delivery of dental care to people with special needs.
Specialized Care Co, Inc. markets products that facilitate the delivery of oral health services. Our products assist dental professionals, nurses and at-home helpers as they provide care for individuals who need dental care, but who are unable to cooperate for safe and effective dental treatment. You may call us toll-free at 800/722-7375 (U.S. and Canada) if you'd like further assistance. For our international visitors, our phone number in the U.S. is 603/926-0071 and our fax number is 603/926-5905.
Specialized Care Co, Inc. designs, markets and sells products that facilitate the delivery of oral health services. Our products include Rainbow Stabilizing Systems (some people refer to these generically as Papoose Boards), Airway Positioners and Cushions for knee-to-knee exams; Open Wide mouth props (bite blocks) and mouth rests; Stay N Place pillows for the dental chair, chair liners and booster seats; Surround 3-headed toothbrushes, and training DVDs for delivery of dental care to people with special needs.
Specialized Care Co, Inc. markets products that facilitate the delivery of oral health services. Our products assist dental professionals, nurses and at-home helpers as they provide care for individuals who need dental care, but who are unable to cooperate for safe and effective dental treatment. You may call us toll-free at 800/722-7375 (U.S. and Canada) if you'd like further assistance. For our international visitors, our phone number in the U.S. is 603/926-0071 and our fax number is 603/926-5905.
Stressed Anyone?
Stressed Anyone?
Home > Other Diseases > Stressed Anyone?
A flat tyre when you are already running 20 minutes late for office – stress; not able to meet deadlines – more stress; pile-on friends coming over on weekdays – stress + grump…. there couldn’t be enough reasons to avoid this unwanted condition of getting stressed every now and then. To be honest, no one can control the “causes” of stress but yes, can learn to deal with the metal exhaustion it creates.
Try to follow the simple things, make certain lifestyle changes, and be a happy person all along!!
T – Time Management: A planned and organised day well in advance saves a lot of stress. Maintain an organiser to avoid forgetting important things and stuff to do. Priorities your daily chores, do first things first. Keep time slots for the day’s work and stick to it.
R – Rest and relax: Incorporate some relaxation ideas into your day. Watching your favourite TV show or reading a book, even listening to music helps in a big way. Take up a hobby or just sit by the window chatting with friends. Anything that you like doing will do the trick and ease off the mental pressure.
E – Exercise: Nothing can beat exercising in relieving stress. A good work out session post office hours will take away all the gloom and stress by surging the adrenaline rush which will make you feel good and happy. And with all that working out, the compliments that you receive will add to your de-stressing.
S – Smile more: Smiling always makes things easier in life and comes for free too!! When you smile often, you see more faces around you smiling back in response. That definitely feels great and you feel little less stressed.
S – Simplify life: Make life simple. Don’t complicate it by trying to do everything all by yourself.
Home > Other Diseases > Stressed Anyone?
Stressed Anyone?
Beat stress with our simple S.T.R.E.S.S. management Tips A flat tyre when you are already running 20 minutes late for office – stress; not able to meet deadlines – more stress; pile-on friends coming over on weekdays – stress + grump…. there couldn’t be enough reasons to avoid this unwanted condition of getting stressed every now and then. To be honest, no one can control the “causes” of stress but yes, can learn to deal with the metal exhaustion it creates. Try to follow the simple things, make certain lifestyle changes, and be a happy person all along!!
S.T.R.E.S.S. Management Tips
S – Sleep: In today’s time, getting enough sleep is not an easy and simple thing to find. A peaceful eight hours sleep is something a lot of people crave for and can be a cause of impending stress. Caffeine, alcohol, heavy and greasy food causes indigestion and interfere with sound sleep. Setting a routine bed time, a glass of warm milk, no television in bedroom, and washing your feet just before getting in the bed will definitely aid in a blissful slumber.T – Time Management: A planned and organised day well in advance saves a lot of stress. Maintain an organiser to avoid forgetting important things and stuff to do. Priorities your daily chores, do first things first. Keep time slots for the day’s work and stick to it.
R – Rest and relax: Incorporate some relaxation ideas into your day. Watching your favourite TV show or reading a book, even listening to music helps in a big way. Take up a hobby or just sit by the window chatting with friends. Anything that you like doing will do the trick and ease off the mental pressure.
E – Exercise: Nothing can beat exercising in relieving stress. A good work out session post office hours will take away all the gloom and stress by surging the adrenaline rush which will make you feel good and happy. And with all that working out, the compliments that you receive will add to your de-stressing.
S – Smile more: Smiling always makes things easier in life and comes for free too!! When you smile often, you see more faces around you smiling back in response. That definitely feels great and you feel little less stressed.
S – Simplify life: Make life simple. Don’t complicate it by trying to do everything all by yourself.
| Indus Health Plus (P) Ltd. 'INDUS HOUSE', Pride Port, Model Colony, Pune- 411 016 Maharashtra, India | |
Chris Cooper and Company - Managing the Cost of Terminal Illness, Part 3: Consider Palliative Care
Chris Cooper and Company - Managing the Cost of Terminal Illness, Part 3: Consider Palliative Care:
What Is Palliative Care? | 18 March 2013
Palliative care is an approach to medical treatment that involves taking steps to relieve pain and improve quality of life for people with serious illnesses (such as AIDS, cancer, Alzheimer's disease or Parkinson's disease). Unlike hospice care, which is specifically for people who are close to death, palliative care is for anyone with a serious illness. And it doesn't take the place of more traditional treatments—it simply offers additional services (such as help with pain, insomnia, nausea or other symptoms) in coordination with traditional care. Typically, it involves a team approach, with doctors, nurses, social workers/counselors, and perhaps even clergy members and nutritionists working together to help the patient. Palliative care considers a patient's physical health along with their emotional and spiritual needs.
While the term palliative care is relatively new, this approach to treatment has actually been around for decades and is offered by many hospitals. And there's evidence that patients who receive this type of care enjoy better quality of life. One study found that people who had advanced lung cancer and received palliative care lived longer and required less chemotherapy and hospitalization.
What Is Palliative Care? | 18 March 2013
Palliative care is an approach to medical treatment that involves taking steps to relieve pain and improve quality of life for people with serious illnesses (such as AIDS, cancer, Alzheimer's disease or Parkinson's disease). Unlike hospice care, which is specifically for people who are close to death, palliative care is for anyone with a serious illness. And it doesn't take the place of more traditional treatments—it simply offers additional services (such as help with pain, insomnia, nausea or other symptoms) in coordination with traditional care. Typically, it involves a team approach, with doctors, nurses, social workers/counselors, and perhaps even clergy members and nutritionists working together to help the patient. Palliative care considers a patient's physical health along with their emotional and spiritual needs.
While the term palliative care is relatively new, this approach to treatment has actually been around for decades and is offered by many hospitals. And there's evidence that patients who receive this type of care enjoy better quality of life. One study found that people who had advanced lung cancer and received palliative care lived longer and required less chemotherapy and hospitalization.
How To Use the Alzheimer's Reading Room Knowledge Base | Alzheimer's Reading Room
How To Use the Alzheimer's Reading Room Knowledge Base | Alzheimer's Reading Room: How To Use the Alzheimer's Reading Room Knowledge Base
The Alzheimer's Reading Room Knowledge Base contains more than 4,000 articles. In the Alzheimer's Reading Room (ARR), we offer "real life" solutions to problems that Alzheimer's caregivers and their families encounter each day.
By Bob DeMarco
Alzheimer's Reading Room
How To Use the Alzheimer's Reading Room Knowledge Base
The goal of the Alzheimer's Reading Room is to Educate, Empower, and sometimes Entertain Alzheimer's caregivers, their families, and the entire Alzheimer's community.
At its core the Alzheimer's Reading Room is about helping members of the Alzheimer's and Dementia Community understand, cope, and communicate with persons living with Alzheimer's and Dementia.
The Alzheimer's Reading Room is currently the number one source of information for Alzheimer's, dementia, memory loss, and related health and life news on the Internet.
Subscribe to the Alzheimer's Reading Room
Email:
You can access the Alzheimer's Reading Room Knowledge Base by using the search box that is available on every page on this website.
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The Alzheimer's Reading Room Knowledge Base contains more than 4,000 articles. In the Alzheimer's Reading Room (ARR), we offer "real life" solutions to problems that Alzheimer's caregivers and their families encounter each day.
By Bob DeMarco
Alzheimer's Reading Room
How To Use the Alzheimer's Reading Room Knowledge Base
The goal of the Alzheimer's Reading Room is to Educate, Empower, and sometimes Entertain Alzheimer's caregivers, their families, and the entire Alzheimer's community.
At its core the Alzheimer's Reading Room is about helping members of the Alzheimer's and Dementia Community understand, cope, and communicate with persons living with Alzheimer's and Dementia.
The Alzheimer's Reading Room is currently the number one source of information for Alzheimer's, dementia, memory loss, and related health and life news on the Internet.
Subscribe to the Alzheimer's Reading Room
Email:
You can access the Alzheimer's Reading Room Knowledge Base by using the search box that is available on every page on this website.
---
Bob DeMarco
Founder, Alzheimer's Reading Room
From Grief Comes A Mission To Make Estate Planning Less Daunting : NPR
From Grief Comes A Mission To Make Estate Planning Less Daunting : NPR:
Estate planning may seem like a pain, but imagine the mess you leave to those managing your affairs if you don't draw up a will or get life insurance.
"It takes really just a few hours now, rather than a pile of hours and thousands of dollars to do it later when you really need it done," says Chanel Reynolds, who created a website geared to help people get their affairs in order.
Her site — which is a NSFW riff on "get your stuff together" — features a checklist and templates for some key documents, including a will, living will and power of attorney. It also suggests compiling online account usernames and passwords and putting these key documents in a safe or scanning and uploading them to a password-protected site.
Reynolds also suggests setting aside emotional items like photos of yourself, "so that when you're gone people can touch them and hold them and feel them and remember you as well."
For wills, Reynolds notes that lawyers can help, but there are also affordable online software options. "I didn't realize that creating a will, you don't need a lawyer to do it for you," she says. "In most states you need two witnesses and/or someone to notarize it. And it can save your family weeks and weeks and hundreds of hours of pain and confusion and legal costs that you probably can't afford."
Estate planning may seem like a pain, but imagine the mess you leave to those managing your affairs if you don't draw up a will or get life insurance.
"It takes really just a few hours now, rather than a pile of hours and thousands of dollars to do it later when you really need it done," says Chanel Reynolds, who created a website geared to help people get their affairs in order.
Her site — which is a NSFW riff on "get your stuff together" — features a checklist and templates for some key documents, including a will, living will and power of attorney. It also suggests compiling online account usernames and passwords and putting these key documents in a safe or scanning and uploading them to a password-protected site.
Reynolds also suggests setting aside emotional items like photos of yourself, "so that when you're gone people can touch them and hold them and feel them and remember you as well."
For wills, Reynolds notes that lawyers can help, but there are also affordable online software options. "I didn't realize that creating a will, you don't need a lawyer to do it for you," she says. "In most states you need two witnesses and/or someone to notarize it. And it can save your family weeks and weeks and hundreds of hours of pain and confusion and legal costs that you probably can't afford."
ADvancing Care Newsletter | alz.org/nyc
ADvancing Care Newsletter | alz.org/nyc:
Alzheimer's Association, New York City Chapter
360 Lexington Avenue., Fl. 4, New York, NY 10017
Alzheimer's Association is a not-for-profit 501(c)(3) organization.
Alzheimer's Association, New York City Chapter
360 Lexington Avenue., Fl. 4, New York, NY 10017
Alzheimer's Association is a not-for-profit 501(c)(3) organization.
Culture change towards person-centred care in Canada
Culture change towards person-centred care: Culture change towards person-centred care in Canada
Person-centred care of people with dementia living in care homes: Executive summary
The Alzheimer Society believes that people with dementia have the right to enjoy the highest possible quality of life and quality of care. The Society believes that each person with dementia is an individual, regardless of the stage of the disease, and that care should be individually tailored to their unique needs, interests, habits and desires.
To achieve this goal, the Alzheimer Society of Canada looked for evidence-based research that shows how to successfully implement person-centred programs and practices in long-term care homes. The result of this research is the Guidelines for care: Person-centred care of people with dementia living in care homes framework, which includes the input of peop
le with dementia, family caregivers, researchers, educators, long-term care home staff, and various stakeholders.
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Alzheimer Society of Canada
20 Eglinton Avenue West, 16th Floor,
Toronto, Ontario, M4R 1K8
Tel: 416-488-8772 Fax: 416-322-6656
Toll-free: 1-800-616-8816
Email: info@alzheimer.ca
Person-centred care of people with dementia living in care homes: Executive summary
The Alzheimer Society believes that people with dementia have the right to enjoy the highest possible quality of life and quality of care. The Society believes that each person with dementia is an individual, regardless of the stage of the disease, and that care should be individually tailored to their unique needs, interests, habits and desires.
To achieve this goal, the Alzheimer Society of Canada looked for evidence-based research that shows how to successfully implement person-centred programs and practices in long-term care homes. The result of this research is the Guidelines for care: Person-centred care of people with dementia living in care homes framework, which includes the input of peop
Guidelines for care
The Guidelines for care framework consists of the following sections:- What does a person-centred philosophy mean?
- What does person-centred care look like in a care home?
le with dementia, family caregivers, researchers, educators, long-term care home staff, and various stakeholders.
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Alzheimer Society of Canada
20 Eglinton Avenue West, 16th Floor,
Toronto, Ontario, M4R 1K8
Tel: 416-488-8772 Fax: 416-322-6656
Toll-free: 1-800-616-8816
Email: info@alzheimer.ca
Massachusetts | Consumer and Provider Service Organizations
Resource List
The Official Website of the Executive Office of Health and Human Services (EOHHS)
This is a partial listing of frequently used resources. When contacting any of the organizations listed below, be sure to ask if they have suggestions about additional resources you may want to contact.
Division of Health Care Quality
Telephone: (617) 753-8000
Survey Tool Information: (617) 753-8000
Web Site: http://www.mass.gov/dph/dhcq
Massachusetts Executive Office of Elder Affairs
General Information & Referral Assistance (9am-5pm)
Telephone: (617) 727-7750 or 1-800-882-2003
(24 hours) 1-800-882-2275
Web Site: http://www.mass.gov/elder
The Massachusetts Commission on End of Life Care
250 Washington St
4th Floor
Boston, MA 02108
Phone:617-624-5437
Fax: 617-624-5075
Web Site: http://www.endoflifecommission.org
MassHealth
Client Services, Medicaid Eligibility
Telephone: (617) 210-5000
Web Site: http://www.mass.gov/masshealth
Massachusetts Division of Insurance
Consumer Services Section
Information on Long-Term Care Insurance
Telephone: (617) 521-7777
Web Site: http://www.mass.gov/doi/
Massachusetts Office of the Attorney General
Consumer Protection Division
Telephone: (617) 727-8400
Web Site: http://www.mass.gov/ago
Telephone: (617) 494-5150
Helpline: 1-800-548-2111
Massachusetts Aging Services Association, Inc.
Telephone: (617) 739-3235
Web Site: http://www.massaging.org/
Living is for the Elderly (LIFE) Nursing Home Resident Advocacy Group
Telephone: (781) 646-1000 ext. 4733
Massachusetts Senior Care Association
Telephone: (617) 558-0202
Web Site: www.maseniorcare.org
Massachusetts Elderline
General Consumer Information on Free Prescription Drug Program and
Services for the Elderly
Telephone: 1-800-AGE-INFO
Hospice Federation of Massachusetts
Telephone: (781) 225-7077
Web Site: http://www.hospicefed.org
This information is provided by the Division of Health Care Quality within the Department of Public Health.
Government Agencies
Massachusetts Department of Public HealthDivision of Health Care Quality
Telephone: (617) 753-8000
Survey Tool Information: (617) 753-8000
Web Site: http://www.mass.gov/dph/dhcq
Massachusetts Executive Office of Elder Affairs
General Information & Referral Assistance (9am-5pm)
Telephone: (617) 727-7750 or 1-800-882-2003
(24 hours) 1-800-882-2275
Web Site: http://www.mass.gov/elder
The Massachusetts Commission on End of Life Care
250 Washington St
4th Floor
Boston, MA 02108
Phone:617-624-5437
Fax: 617-624-5075
Web Site: http://www.endoflifecommission.org
MassHealth
Client Services, Medicaid Eligibility
Telephone: (617) 210-5000
Web Site: http://www.mass.gov/masshealth
Massachusetts Division of Insurance
Consumer Services Section
Information on Long-Term Care Insurance
Telephone: (617) 521-7777
Web Site: http://www.mass.gov/doi/
Massachusetts Office of the Attorney General
Consumer Protection Division
Telephone: (617) 727-8400
Web Site: http://www.mass.gov/ago
Consumer and Provider Service Organizations
Alzheimer's Association of Eastern MassachusettsTelephone: (617) 494-5150
Helpline: 1-800-548-2111
Massachusetts Aging Services Association, Inc.
Telephone: (617) 739-3235
Web Site: http://www.massaging.org/
Living is for the Elderly (LIFE) Nursing Home Resident Advocacy Group
Telephone: (781) 646-1000 ext. 4733
Massachusetts Senior Care Association
Telephone: (617) 558-0202
Web Site: www.maseniorcare.org
Massachusetts Elderline
General Consumer Information on Free Prescription Drug Program and
Services for the Elderly
Telephone: 1-800-AGE-INFO
Hospice Federation of Massachusetts
Telephone: (781) 225-7077
Web Site: http://www.hospicefed.org
This information is provided by the Division of Health Care Quality within the Department of Public Health.
Complementary Content
Massachusetts Home Care Program | Executive office of Elder Affairs in coordination with Aging Services Access Points (ASAPs),
Home Care Program Overview
Home Care Program Overview
The Massachusetts Home Care Program provides support services to elders with daily living needs to help maintain independent community living. Services are designed to encourage independence and ensure dignity. The program also supports families caring for elders in order to encourage and relieve ongoing care giving responsibilities. The Home Care Program is administered by the Executive office of Elder Affairs in coordination with Aging Services Access Points (ASAPs), located in communities throughout the Commonwealth of Massachusetts. The program provides homemaker, personal care, day care, home delivered meals, transportation, and an array of other community support services to help elders remain in their homes. The ASAP conducts comprehensive needs assessments to determine eligibility for the Home Care Program as well as other programs and services as appropriate. An individualized service plan is developed with the elder and his/her family. On an ongoing basis, the ASAP conducts reassessments and monitors services for quality.
Eligibility for the Home Care Program is based on age (60 years or older or under 60 with a diagnosis of Alzheimer's disease and in need or respite services), financial status, and ability to carry out daily tasks such as bathing, dressing, and meal preparation.
FIL 2 2-3 ADL impairments
FIL 3 6-10 ADL/IADL impairments
Eligibility for the Home Care Program is based on age (60 years or older or under 60 with a diagnosis of Alzheimer's disease and in need or respite services), financial status, and ability to carry out daily tasks such as bathing, dressing, and meal preparation.
Eligibility for the Home Care Program
Age
60 years or older or under 60 with a diagnosis of Alzheimer's disease and in need of respite servicesCodes
Functional Impairment Levels (FIL) - Activities of Daily Living (ADLs) - Instrumental Activities of Daily Living (IADLs)Uniform Intake
Functional Impairment Level (FIL) 1-3, with critical unmet needsFunctional Impairment Levels
FIL 1 4-7 ADL impairmentsFIL 2 2-3 ADL impairments
FIL 3 6-10 ADL/IADL impairments
- Activities of Daily Living (ADLs) include bathing, dressing, eating, toileting, continence, transferring, and mobility
- Instrumental Activities of Daily Living (IADLs) include meal preparation, shopping, laundry, managing money, housework, transportation, use of telephone, outdoor mobility, and taking medicine
- Critical Unmet Needs include ADLs, meal preparation, shopping, medical transportation, and need for home health services or respite care
Financial
MassHealth members are financially eligible. Income guidelines require Annual Gross Income less than $24,838/single and 35,145/couple.Monthly Co-Payments
- $9-$130 for individuals with incomes that range from $10,924-$24,837
- $17-$140 for couples with incomes that range from $14,646-$35,144
Respite Over-Income Scale
- 50%-100% of cost of services
Marie Marley Author, 'Grandma Doesn't Know My Name!' Helping Your Child Cope with Alzheimer's
brochure_childrenteens.pdf (application/pdf Object)
The Alzheimer's Association has published a brochure for parents that lists the following behaviors children may exhibit if they are having a hard time understanding or accepting the disease:
This is an official publication of the Alzheimer's Association but may be distributed by unaffiliated organizations and individuals. Such distribution does not constitute an endorsement of these parties or their activities by the Alzheimer's Association. For information and support, contact the Alzheimer's Association: 800.272.3900 alz.org
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Marie Marley
Children can be deeply affected when a beloved grandparent develops Alzheimer's disease. They may become afraid, confused, sad, angry, frustrated, guilty, worried, or embarrassed -- just to name a few potential feelings. Although each child reacts differently, there are some common fears:
1. The grandparent doesn't love them anymore
2. Their grandparent may be crazy
3. It's their fault that their grandparent is sick
4. They may catch the disease
5. Their parent(s) may get it
The Alzheimer's Association has published a brochure for parents that lists the following behaviors children may exhibit if they are having a hard time understanding or accepting the disease:
This is an official publication of the Alzheimer's Association but may be distributed by unaffiliated organizations and individuals. Such distribution does not constitute an endorsement of these parties or their activities by the Alzheimer's Association. For information and support, contact the Alzheimer's Association: 800.272.3900 alz.org
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Marie Marley
Children can be deeply affected when a beloved grandparent develops Alzheimer's disease. They may become afraid, confused, sad, angry, frustrated, guilty, worried, or embarrassed -- just to name a few potential feelings. Although each child reacts differently, there are some common fears:
1. The grandparent doesn't love them anymore
2. Their grandparent may be crazy
3. It's their fault that their grandparent is sick
4. They may catch the disease
5. Their parent(s) may get it
Loneliness and depression in spousal caregivers [Arch Psychiatr Nurs. 2003] - PubMed - NCBI
Loneliness and depression in spousal car... [Arch Psychiatr Nurs. 2003] - PubMed - NCBI: Arch Psychiatr Nurs. 2003 Jun;17(3):135-43.
Loneliness and depression in spousal caregivers of those with Alzheimer's disease versus non-caregiving spouses.
William F Connell School of Nursing, Boston College, Chestnut Hill, MA 02467-3812, USA. B29111@aol.com
Abstract
Loneliness as a factor in the development of depression in Alzheimer's disease (AD) spousal caregivers has been given little attention. In this sample, 49 AD caregiving spouses reported significantly higher levels of loneliness and depression than did 52 non-caregiving spouses. AD caregiving wives reported greater loss of self and significantly higher levels of loneliness and depression than did AD caregiving husbands. Loneliness was the only predictive variable for AD caregiver depression, explaining 49% of the total variance. To meet the mental health needs of AD caregiving spouses, loneliness must be addressed along with the development of nursing interventions.
Loneliness and depression in spousal caregivers of those with Alzheimer's disease versus non-caregiving spouses.
William F Connell School of Nursing, Boston College, Chestnut Hill, MA 02467-3812, USA. B29111@aol.com
Abstract
Loneliness as a factor in the development of depression in Alzheimer's disease (AD) spousal caregivers has been given little attention. In this sample, 49 AD caregiving spouses reported significantly higher levels of loneliness and depression than did 52 non-caregiving spouses. AD caregiving wives reported greater loss of self and significantly higher levels of loneliness and depression than did AD caregiving husbands. Loneliness was the only predictive variable for AD caregiver depression, explaining 49% of the total variance. To meet the mental health needs of AD caregiving spouses, loneliness must be addressed along with the development of nursing interventions.
Planning Checklist: For patients and their caregivers preparing to leave a hospital, nursing home, or other care setting11376.pdf
- http://www.medicare.gov/publications/pubs/pdf/11376.pdf
Your Discharge Planning Checklist:
During your stay, your doctor and the staff will work with you to plan for
your discharge. You and your caregiver (a family member or friend who may
be helping you) are important members of the planning team. Below is a
checklist of important things you and your caregiver should know to prepare
for discharge.
Instructions:
•
Use this checklist early and often during your stay.
Talk to your doctor and the staff (like a discharge planner, social worker, or nurse) about the items on the checklist.
Check the box next to each item when you and your caregiver complete it.
Use the notes column to write down important information
(like names and phone numbers).
Skip any items that don’t apply to you
Your Discharge Planning Checklist:
For patients and their caregivers preparing to leave a hospital, nursing home,
or other care setting
During your stay, your doctor and the staff will work with you to plan for
your discharge. You and your caregiver (a family member or friend who may
be helping you) are important members of the planning team. Below is a
checklist of important things you and your caregiver should know to prepare
for discharge.
Instructions:
•
Use this checklist early and often during your stay.
Talk to your doctor and the staff (like a discharge planner, social worker, or nurse) about the items on the checklist.
Check the box next to each item when you and your caregiver complete it.
Use the notes column to write down important information
(like names and phone numbers).
Skip any items that don’t apply to you
Clinical Trials for Alzheimer's Disease and Dementia | Alzheimer's Association Research Center
Clinical Trials for Alzheimer's Disease and Dementia | Alzheimer's Association Research Center:
They need your help to advance research
Through clinical trials, researchers test new ways to detect, treat and prevent Alzheimer's disease and dementia. Recruiting and retaining clinical trial participants is now the greatest obstacle, other than funding, to developing the next generation of Alzheimer's treatments.
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They need your help. Without participation, finding a cure is virtually impossible.
#alzheimers
They need your help to advance research
Through clinical trials, researchers test new ways to detect, treat and prevent Alzheimer's disease and dementia. Recruiting and retaining clinical trial participants is now the greatest obstacle, other than funding, to developing the next generation of Alzheimer's treatments.
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They need your help. Without participation, finding a cure is virtually impossible.
#alzheimers
Download EasyLiving Free "Long Distance Caregiver Checkli
Download EasyLiving Free "Long Distance Caregiver Checkli
The EasyLiving Home Caregiving Difference: With many years advocating for the rights of seniors and their families in Florida, we recognized what was lacking among private duty home care providers that elders needed most: flexible, high quality, personalized home caregiving. We established EasyLiving in response to what we would want for our own family, more personalized service, flexible scheduling and reliable, expert caregivers. We’re at your service whenever and wherever you need us, with home care for the way you live.
Phone: 727-448-0900
Fax: 727-443-5258 1180 Ponce de Leon Blvd., Suite 701 Clearwater, FL 33756 Serving Pinellas and Pasco Counties-Clearwater, Largo, Belleair, Seminole, St. Petersburg, Dunedin, Palm Harbor, Tarpon Springs, New Port Richey and more
The EasyLiving Home Caregiving Difference: With many years advocating for the rights of seniors and their families in Florida, we recognized what was lacking among private duty home care providers that elders needed most: flexible, high quality, personalized home caregiving. We established EasyLiving in response to what we would want for our own family, more personalized service, flexible scheduling and reliable, expert caregivers. We’re at your service whenever and wherever you need us, with home care for the way you live.
Phone: 727-448-0900
Fax: 727-443-5258 1180 Ponce de Leon Blvd., Suite 701 Clearwater, FL 33756 Serving Pinellas and Pasco Counties-Clearwater, Largo, Belleair, Seminole, St. Petersburg, Dunedin, Palm Harbor, Tarpon Springs, New Port Richey and more
Senior Care Tips for Sundowners Syndrome
Senior Care Tips for Sundowners Syndrome: EasyLiving Blog
Have you noticed your loved one with dementia experiencing changed sleeping patterns and more difficulty late in the day?
Most likely you are experiencing the set of symptoms termed Sundowners Syndrome or sundowning behavior in dementia. For a variety of reasons (from our bodies' natural rhythms and light signals to learned patterns), persons with dementia may have particular difficulty in the late afternoon and evening hours. The person often feels a sense of restlesness and agitation--a need to go somewhere or do something, the sense of being unsettled. This may manifest itself as a need "to go home" and lead to wandering or may show up in a variety of behaviors.
Senior care providers should be aware of this set of symptoms and watch for such patterns. A care facility may want to staff this time of day differently or plan for specific activities and try to manage the environment. Some examples include changes to lighting, providing distracting and/or calming activities during this time, ensuring residents have a snack and are well-rested and reducing irritating stimuli. More one-on-one attention may be needed for safety and reassurance during late afternoons and evenings.
Senior caregivers caring for a loved one or client at home should also monitor for different behaviors and patterns. What are some things you can do to better manage sundowners syndrome and provide safe, dignified dementia care?
Have you noticed your loved one with dementia experiencing changed sleeping patterns and more difficulty late in the day?
Most likely you are experiencing the set of symptoms termed Sundowners Syndrome or sundowning behavior in dementia. For a variety of reasons (from our bodies' natural rhythms and light signals to learned patterns), persons with dementia may have particular difficulty in the late afternoon and evening hours. The person often feels a sense of restlesness and agitation--a need to go somewhere or do something, the sense of being unsettled. This may manifest itself as a need "to go home" and lead to wandering or may show up in a variety of behaviors.
Senior care providers should be aware of this set of symptoms and watch for such patterns. A care facility may want to staff this time of day differently or plan for specific activities and try to manage the environment. Some examples include changes to lighting, providing distracting and/or calming activities during this time, ensuring residents have a snack and are well-rested and reducing irritating stimuli. More one-on-one attention may be needed for safety and reassurance during late afternoons and evenings.
Senior caregivers caring for a loved one or client at home should also monitor for different behaviors and patterns. What are some things you can do to better manage sundowners syndrome and provide safe, dignified dementia care?
Wandering and Elopement Resources | NCCDP Endorses Project Lifesaver
Wandering and Elopement Resources: Practitioner Definition
NCCDP Endorses Project Lifesaver
FEATURED LINKS
Elopement Resource Manual from Healthcare Association of New York
Wandering and Elopement: Litigation Issues from http://www.nccdp.org/wandering.htm
Marie Boltz, MSN, APRN-BC, NHA Director of Practice Initiatives
The John A Hartford Foundation Institute for Geriatric Nursing
NYU College of Nursing
Introduction
One of the most challenging, life-threatening issues related to care of the person with cognitive loss is the occurrence of wandering, wherein the person strays into unsafe territories and may be harmed. The most dangerous form of wandering is elopement in which the confused person leaves an area and does not return. The risk of wandering has become a growing concern of families, long-term care facilities, regulators, and insurers
.1 In addition to civil liability, care providers can be fined by the state regulatory agency for failure to prevent elopement.
2 The effects upon the population served and the staff are no less dramatic. The sense of security of those served and their families is severely shaken, and staff morale as well as the organization’s reputation is dealt a devastating blow.
3 The aim of this chapter is to define wandering, elopement, and related issues, and to summarize the scope of the problems in terms of prevalence and effect. The types and causes of wandering and generally accepted approaches to care will be discussed. The regulatory and risk management considerations will also be presented. A hypothetical case will be presented. Finally, the role of an expert witness will be discussed.
NCCDP Endorses Project Lifesaver
FEATURED LINKS
Elopement Resource Manual from Healthcare Association of New York
- Alert Systems for Missing Adults, CMS report for Congress 2009, Silver Alert Legislation, Golden Alert Legislation
- Alzheimer Dandyfunk for Caregivers - List many products Motion sensors and Tracking
- A Shoe for Wanderers - (with tracking device), October 14 2011 NY Times
- Best Practices for Preventing Elopement With Patients With Dementia in Hospitals - FREE VIDEO TO VIEW
- Breadcrumb - Wandering Solution
- DBS Productions - Alzheimer's Links
- dbs Productions - The Source of Search and Rescue Research, Publications and Training - Wandering Incident: Preparedness
- Dehydration Risk Assessment Tool
- Dementia Care Mapping
- Dementia Care Mapping Book
- Dewing Risk for Wandering Risk Assessment Tool
- Elopement Resource Manual
- Elopement Resource Manual from Healthcare Association of New York
- Elopement Risk Assessment Form
- EM Finders, Elopement Risk Assessment Form, Elopement Risk Assessment Decision Tree
- First Responder Training - Wandering and Elopement
- GPS Shoes
- Guide for the Use of Disguised Doors and other Preventive Exiting Strategies for People with Dementia
- Guidelines for Best Practice Elopement Prevention Assessments, policies and forms
- Keruve Family Direct Locator - GPS Watch and Receiver
- LifeProTekt
- Memory and Behavior Problems Checklist—1990R
- Mental State Exam (MMSE)
- Missing Resident Protocol and Risk Assessments Hazardous Wandering and Elopement Continuing Care Risk Management System
- Myth Busting: The Wandering Issue
- National Institute for Elopement Prevention and Resolution
- New York State EDGE Program Electronic Dementia Guide for Excellence
- Patient Leaves Nursing Home Three Times in One Day
- Personal Alarms: Safety Device or Hazard
- Practical Approaches to Dementia Care
- Project Lifesaver International and Lo Jack Safety Net Solution
- Revised Algase Wandering Scale (RAWS)
- RoamAlert - Stanley Healthcare Solutions
- Short Geriatric Depression Scale (SGDS)
- The Cohen-Mansfield Agitation Inventory: Long Form with Expanded Descriptions of Behaviors
- The Florida Factor, dbs Productions, Wandering Characteristics
- The Windsor Star, Canada, Family sues long term care home over death, November 26th 2012
- US Department of Health and Human Services -Agency for Health Care Research and Quality -
National Guideline Clearinghouse - Wandering Guidelines and Assessments - Vigil Health Solutions - Nurse Call and Dementia Monitoring Technology
- Wandering Behavior
- Wandering Committee Guidelines
- Wandering Behavior: Preparing for It and Preventing It.
- Wandering Protocol
Marie Boltz, MSN, APRN-BC, NHA Director of Practice Initiatives
The John A Hartford Foundation Institute for Geriatric Nursing
NYU College of Nursing
Introduction
One of the most challenging, life-threatening issues related to care of the person with cognitive loss is the occurrence of wandering, wherein the person strays into unsafe territories and may be harmed. The most dangerous form of wandering is elopement in which the confused person leaves an area and does not return. The risk of wandering has become a growing concern of families, long-term care facilities, regulators, and insurers
.1 In addition to civil liability, care providers can be fined by the state regulatory agency for failure to prevent elopement.
2 The effects upon the population served and the staff are no less dramatic. The sense of security of those served and their families is severely shaken, and staff morale as well as the organization’s reputation is dealt a devastating blow.
3 The aim of this chapter is to define wandering, elopement, and related issues, and to summarize the scope of the problems in terms of prevalence and effect. The types and causes of wandering and generally accepted approaches to care will be discussed. The regulatory and risk management considerations will also be presented. A hypothetical case will be presented. Finally, the role of an expert witness will be discussed.
Day Clock | Non traditional clock shows the periods of the day ( i.e particular part of the day)
Day Clock | Dementia Clock | Alzheimer’s Clock
The Day Clocks’ has a clear and simple display of “Now it’s Monday Morning” This clock is unlike any traditional clock you have seen. It does not
have one single number on its face, just the days of the week. Non traditional clock shows the periods of the day ( i.e particular part of the day)
Help your loved ones who have Dementia or memory problems In the US there are as many as 5.4 million people who have Dementia. If a loved one has dementia or any other memory loss problems, the DayClock will help remind them the time of day. Making dementia more manageable.
Help your loved ones who have Dementia or memory problems In the US there are as many as 5.4 million people who have Dementia. If a loved one has dementia or any other memory loss problems, the DayClock will help remind them the time of day. Making dementia more manageable.
The Aetrex Navistar GPS Footwear System · GPS Shoe
The Aetrex Navistar GPS Footwear System · GPS Shoe: GPS Shoe
Millions of seniors with dementia will wander in search of their lost memories. While we can’t find those remembrances, we can find the lost victims themselves.
The Mayo Clinic describes Alzheimer’s and the problem of Wandering: The disease can erase a person’s memory of once-familiar surroundings, as well as make it extremely difficult to adapt to new surroundings. As a result, people who have Alzheimer’s may wander away from their homes or care centers and turn up lost, frightened and disoriented — sometimes far from where they started.
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GPS shoes can help track people with Alzheimer's (video)
Millions of seniors with dementia will wander in search of their lost memories. While we can’t find those remembrances, we can find the lost victims themselves.
The Mayo Clinic describes Alzheimer’s and the problem of Wandering: The disease can erase a person’s memory of once-familiar surroundings, as well as make it extremely difficult to adapt to new surroundings. As a result, people who have Alzheimer’s may wander away from their homes or care centers and turn up lost, frightened and disoriented — sometimes far from where they started.
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GPS shoes can help track people with Alzheimer's (video)
Alzheimer’s Speaks / Shifting Our Dementia Care Culture / International Resources
Alzheimer’s Speaks / Shifting Our Dementia Care Culture / International Resources
Bottom line all businesses, communities as well as individuals need to become Dementia Friendly. The statistics alone show the numbers are staggering and only growing. Now is the time to get ahead of the game before negative outcomes increase. We offer "Dementia Friendly Programs" for both companies and individuals.
Alzheimer's Speaks believes collaboration is the key to living a successful and purpose filled life with dementia. By working together, we can push both conventional and alternative efforts forward in search of answers. By joining forces and sharing knowledge, we can win the battle against dementia.
Shopping for the Right In-home Help By Eileen Beal, MA
Shopping for the Right In-home Help: Shopping for the Right In-home Help
By Eileen Beal, MA
Home care vs. home health aide
Home care aides provide assistance with housekeeping and chores (meal preparation, shopping, errands, etc); socialization and companionship; and may also provide some personal care (bathing and grooming). In some areas, they are called personal care assistants.
Home health aides – increasingly certified nursing assistants (CNAs) and/or state tested nursing assistants (STNA) – provide medically-related care (check blood pressure and glucose levels, dress dry wounds, empty colostomy bags, etc.); assist with therapeutic treatments prescribed by a physician; supervise medication administration; etc.
“The client’s needs and the aide’s skill-level determine what the aide’s [hourly] fee will be. The more skills the aide has, the higher the cost,” says Debbie Adams, RN, the Director of the Cleveland, Ohio-based Western Reserve Area Agency on Aging’s Community Services and Support Program.
Write a job description
Using the information you’ve gathered from discussing and assessing your loved ones’ needs, write a detailed job description. “Care expectations vary from client to client, so having everything in writing means everyone knows, and meets, expectations,” says Lucy Andrews, the nurse/CEO at Santa Rosa, California-based At Your Service Home Care.
By Eileen Beal, MA
Home care vs. home health aide
Home care aides provide assistance with housekeeping and chores (meal preparation, shopping, errands, etc); socialization and companionship; and may also provide some personal care (bathing and grooming). In some areas, they are called personal care assistants.
Home health aides – increasingly certified nursing assistants (CNAs) and/or state tested nursing assistants (STNA) – provide medically-related care (check blood pressure and glucose levels, dress dry wounds, empty colostomy bags, etc.); assist with therapeutic treatments prescribed by a physician; supervise medication administration; etc.
“The client’s needs and the aide’s skill-level determine what the aide’s [hourly] fee will be. The more skills the aide has, the higher the cost,” says Debbie Adams, RN, the Director of the Cleveland, Ohio-based Western Reserve Area Agency on Aging’s Community Services and Support Program.
Write a job description
Using the information you’ve gathered from discussing and assessing your loved ones’ needs, write a detailed job description. “Care expectations vary from client to client, so having everything in writing means everyone knows, and meets, expectations,” says Lucy Andrews, the nurse/CEO at Santa Rosa, California-based At Your Service Home Care.
Renting a Stairlift for short periods
Renting a Stairlift for the Holidays | The Intentional Caregiver: Renting a Stairlift for the Holidays
courtesy of depositphotos.com
Christmas is an exciting time, filled with giving presents and simply being together as a family. You want to be able to enjoy the time spent with family and friends and not spend valuable family time worrying about mobility issues.
If you have become less able in recent years, or if you are caregiving for someone who has, it is understandable that you may not have the same holiday cheer you once had. You may find going to visit family and friends a chore as you or your care recipient struggle to climb up their staircase. You may feel like you will be a burden if you or your loved one cannot move freely around their home. You do not want your family to have to work their Christmas plans around any lack of mobility so you may suggest you will stay at home.
What most people do not realise is that if you can rent a stairlift for the holidays! A mobility lift is the perfect answer to all your mobility needs during the busy Christmas period. Perhaps your children live far away and you would like to stay with them before Christmas until the New Year.
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Features of typical rental lifts include:
courtesy of depositphotos.com
Christmas is an exciting time, filled with giving presents and simply being together as a family. You want to be able to enjoy the time spent with family and friends and not spend valuable family time worrying about mobility issues.
If you have become less able in recent years, or if you are caregiving for someone who has, it is understandable that you may not have the same holiday cheer you once had. You may find going to visit family and friends a chore as you or your care recipient struggle to climb up their staircase. You may feel like you will be a burden if you or your loved one cannot move freely around their home. You do not want your family to have to work their Christmas plans around any lack of mobility so you may suggest you will stay at home.
What most people do not realise is that if you can rent a stairlift for the holidays! A mobility lift is the perfect answer to all your mobility needs during the busy Christmas period. Perhaps your children live far away and you would like to stay with them before Christmas until the New Year.
==
Features of typical rental lifts include:
- Brand new rail and fully reconditioned seat
- Comfortable padded seating and back rest
- Fold up seat, arms and foot rest
- Remote controls
- Battery powered
- Directional paddle switches
- Digital diagnostic display
- Safety sensors
The MedCottage, also nicknamed "the Granny pod",
Where to put elderly parents - National Green Living | Examiner.com: The MedCottage, also nicknamed "the Granny pod", is similar to a three-room apartment but it is equipped like a hospital room. Its water, electric and sewage systems work off the caregiver's home. It has a kitchenette and laundry facilities and comes in three sizes, 288 square feet, 299 square feet, or 605 square feet. The kitchen has a small refrigerator, microwave, and medication dispenser. One wall has a first-aid kit and even a defibrillator machine. There are safety rails, the bathroom is handicapped accessible, and there are three built-in cameras with one in the ceiling over the kitchen area and one in the floor to provide alerts of falls in the unit. Read the Washington Post article for more pictures of the unit and the story of the first occupant of one.
Smart robotic features monitor vital signs, filter air contaminants, and communicate with the outside world. Computers prompt with medication reminders and sensors alert caregivers of problems like the occupant falling and needing help. There are entertainment options for music, literature and watching movies. The state law in Virginia, where they originated, classified them a few years ago as “temporary family health-care structures.” They may not be legal in some states, so get them pre-approved first before buying one.
Smart robotic features monitor vital signs, filter air contaminants, and communicate with the outside world. Computers prompt with medication reminders and sensors alert caregivers of problems like the occupant falling and needing help. There are entertainment options for music, literature and watching movies. The state law in Virginia, where they originated, classified them a few years ago as “temporary family health-care structures.” They may not be legal in some states, so get them pre-approved first before buying one.
Basics of Alzheimer’s Disease |by Elayne Forgie,
Stages of Alzheimer’s
Early Stages – What day is it?
The disease begins in the hippocampus, then spreads to the frontal temporal lobe affecting recent memory, learning of new information, thinking, planning and organization.
Middle Stages – Who are you?
It moves further into the frontal temporal lobe and into the occipital and parietal lobes affecting sensory perception, communication, behaviors, impulse control, judgment and attention to personal appearance.
Late Stages – Who am I?
In the final stages the disease spreads throughout the brain and affects the ability to recognize anyone, including themselves, to control bodily functions and to eat and drink. Eventually, the brain can no longer tell the body what to do.
by Elayne Forgie, President/CEO on Dec 28, 2012 in Alzheimer's Care West Palm Beach ; more information on Alzheimer’s disease, dementia or another cognitive impairment, contact Alzheimer's Care West Palm Beach at (800) 209-4342
Early Stages – What day is it?
The disease begins in the hippocampus, then spreads to the frontal temporal lobe affecting recent memory, learning of new information, thinking, planning and organization.
Middle Stages – Who are you?
It moves further into the frontal temporal lobe and into the occipital and parietal lobes affecting sensory perception, communication, behaviors, impulse control, judgment and attention to personal appearance.
Late Stages – Who am I?
In the final stages the disease spreads throughout the brain and affects the ability to recognize anyone, including themselves, to control bodily functions and to eat and drink. Eventually, the brain can no longer tell the body what to do.
by Elayne Forgie, President/CEO on Dec 28, 2012 in Alzheimer's Care West Palm Beach ; more information on Alzheimer’s disease, dementia or another cognitive impairment, contact Alzheimer's Care West Palm Beach at (800) 209-4342
States With Filial Responsibility Laws | You May Have to Pay for Your Parents' Care
30states.pdf (application/pdf Object)
States with filial responsibility laws are: Alaska, Arkansas,
California, Connecticut, Delaware, Georgia, Idaho, Indiana, Iowa,
Kentucky, Louisiana, Maryland, Massachusetts, Mississippi, Montana,
Nevada, New Hampshire, New Jersey, North Carolina, North Dakota,
Ohio, Oregon, Pennsylvania, Rhode Island, South Dakota,
Tennessee, Utah, Vermont, Virginia, and West Virginia.
You May Have to Pay for Your Parents' Care
States with filial responsibility laws are: Alaska, Arkansas,
California, Connecticut, Delaware, Georgia, Idaho, Indiana, Iowa,
Kentucky, Louisiana, Maryland, Massachusetts, Mississippi, Montana,
Nevada, New Hampshire, New Jersey, North Carolina, North Dakota,
Ohio, Oregon, Pennsylvania, Rhode Island, South Dakota,
Tennessee, Utah, Vermont, Virginia, and West Virginia.
The Collaboration Trap – The Wrong Way to Innovate | Senior Housing Forum
The Collaboration Trap – The Wrong Way to Innovate | Senior Housing Forum: Two Big Collaboration Problems
Collaboration is a good way to solve well defined problems where there is already a set of possible solutions. It is a terrible way to innovate. There are two reasons why collaboration is an ineffective . . . even impossible path to innovation:
1. Unequal Power – Good collaborative efforts put considerable time and effort into making sure all stakeholders have a voice. The process may even include a framework that allows the minor stakeholders have a disproportionately strong voice. Yet for all of that, some participants will have much more influence than others. In some cases it is strength that comes from position and in other cases, it comes from having a strong charismatic or forceful personality.
2. Accommodation – The word collaboration suggests that everyone has a voice and every voice has value. This means that as solutions begin to emerge there is an innate tendency to make sure everyone has contributed to the solution. That each person can say about some part of the solution “That was my idea” or “my contribution.” This means that ultimately, the solution(s) will regress to the mean, in other words regress to something that accommodates everyone even if not optimal.
--
author: Steve Moran
smoran@seniorhousingforum.net
seniorhousingforum.net
916-390-2238
If you like this story subscribe to his email list.
++++++++++++++
Don’t miss a single issue of Senior Housing Forum, subscribe today. It is free! We do not sell or share your contact information. The posts are practical and never too long.
Go to the main page of Senior Housing Forum and on the top you will see a link to our subscription sign-up page. You will receive notification when a new article is posted. You can unsubscribe at any time.
Collaboration is a good way to solve well defined problems where there is already a set of possible solutions. It is a terrible way to innovate. There are two reasons why collaboration is an ineffective . . . even impossible path to innovation:
1. Unequal Power – Good collaborative efforts put considerable time and effort into making sure all stakeholders have a voice. The process may even include a framework that allows the minor stakeholders have a disproportionately strong voice. Yet for all of that, some participants will have much more influence than others. In some cases it is strength that comes from position and in other cases, it comes from having a strong charismatic or forceful personality.
2. Accommodation – The word collaboration suggests that everyone has a voice and every voice has value. This means that as solutions begin to emerge there is an innate tendency to make sure everyone has contributed to the solution. That each person can say about some part of the solution “That was my idea” or “my contribution.” This means that ultimately, the solution(s) will regress to the mean, in other words regress to something that accommodates everyone even if not optimal.
--
author: Steve Moran
smoran@seniorhousingforum.net
seniorhousingforum.net
916-390-2238
If you like this story subscribe to his email list.
++++++++++++++
Don’t miss a single issue of Senior Housing Forum, subscribe today. It is free! We do not sell or share your contact information. The posts are practical and never too long.
Go to the main page of Senior Housing Forum and on the top you will see a link to our subscription sign-up page. You will receive notification when a new article is posted. You can unsubscribe at any time.
Caregiver Cards
Communication Is Important
Communication is considered a shared responsibility. However, in dealing with persons affected with Alzheimer’s and dementias, the responsibility for understanding and being understood lies squarely with the caregiver.Communication is quite simply the act of conveying or sharing information. Alzheimer’s and related dementias eventually create a barrier to effective communication, mostly dealing with the language part of communication.
Caregiver Cards was founded off of the idea that not only are persons living with Alzheimer’s entitled to supportive and the best possible care, so are the caregivers. We understand so well, because we have cared for our loved ones too.
žCommunication is considered a shared responsibility. However, in dealing with persons affected with Alzheimer’s and similar dementias, the responsibility for understanding and being understood lies squarely with YOU the caregiver.
žYou, the caregiver, will be in charge of handling Caregiver Cards, and helping your loved one find their voice with a new style of communicating.
How to Interact with a Person with Dementia in Distress |
Tips for Families & Volunteers on Visiting the Person with Dementia
MindStart - Puzzles, Games, and More for Persons with Memory Loss
Tips for Having a Good Visit
Individuals with dementia can have difficulty with recent memories and with communicating, making it harder to maintain relationships with others on their own. Often, their friends, neighbors, and extended family members do not know how to handle this, so stop visiting or calling. Offer these tips to decrease the fear and make the visit successful.
Choose a quiet calm location
Introduce yourself, as needed
Keep focus on the person, using eye contact and patience
Avoid correcting; instead offer reassurance and praise
Avoid open-ended questions; instead use yes/no questions or questions where 2 choices are given
Monitor body language and facial expressions of the person
Enter their world. Talk about what they are thinking about at the time.
Reminiscence is a wonderful tool. Talk about past interests or significant life events.
Use adapted Alzheimer activities to form a connection and have fun together.
Individuals with dementia can have difficulty with recent memories and with communicating, making it harder to maintain relationships with others on their own. Often, their friends, neighbors, and extended family members do not know how to handle this, so stop visiting or calling. Offer these tips to decrease the fear and make the visit successful.
Choose a quiet calm location
Introduce yourself, as needed
Keep focus on the person, using eye contact and patience
Avoid correcting; instead offer reassurance and praise
Avoid open-ended questions; instead use yes/no questions or questions where 2 choices are given
Monitor body language and facial expressions of the person
Enter their world. Talk about what they are thinking about at the time.
Reminiscence is a wonderful tool. Talk about past interests or significant life events.
Use adapted Alzheimer activities to form a connection and have fun together.
Don't know what to do when visiting with the person with dementia?
This is the perfect 'kit' to have a variety of activities that work for different stages of dementia.
Includes your choice of one 26 piece puzzle, various level re-usable word searches, and lacing card in a handy binder.
Official Site of the National Council of Certified Dementia Practitioners, LLC
Official Site of the National Council of Certified Dementia Practitioners, LLC: The newest component of the NCCDP is the Alzheimer’s and Dementia Staff Education Week Tool Kit.
The Tool Kit is available at www.nccdp.org. The Tool Kit and the declaration by the NCCDP Alzheimer's and Dementia Staff Education Week February 14th to the 21st was developed and implemented to bring awareness to the importance of staff educators being trained and certified in dementia care and to provide education by means of face to face interactive classroom environment and to provide comprehensive dementia education to all healthcare professionals and line staff. NCCDP recognizes the important contribution that Nurse Educators and Staff Educators provide to health care professionals and line staff and in honor of this week the NCCDP is seeking nominations for Nurse Educator and Staff Educator of the Year.
Currently there are no national standards for dementia education. The regulations are different from state to state. The NCCDP recommends at minimum an initial 8 hours of dementia education to all staff. Through out the year, additional dementia education should be provided that incorporates new advances, culture change and innovative ideas.
The tool kit includes:
In addition to facilitating the Train the Trainer programs, The NCCDP promotes dementia education and certification of all staff as Certified Dementia Practitioners (CDP®).
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The Tool Kit is available at www.nccdp.org. The Tool Kit and the declaration by the NCCDP Alzheimer's and Dementia Staff Education Week February 14th to the 21st was developed and implemented to bring awareness to the importance of staff educators being trained and certified in dementia care and to provide education by means of face to face interactive classroom environment and to provide comprehensive dementia education to all healthcare professionals and line staff. NCCDP recognizes the important contribution that Nurse Educators and Staff Educators provide to health care professionals and line staff and in honor of this week the NCCDP is seeking nominations for Nurse Educator and Staff Educator of the Year.
Currently there are no national standards for dementia education. The regulations are different from state to state. The NCCDP recommends at minimum an initial 8 hours of dementia education to all staff. Through out the year, additional dementia education should be provided that incorporates new advances, culture change and innovative ideas.
The tool kit includes:
- Free Power Point / Over Head In-services for Health Care Staff, Tests and Answers, Seminar Evaluation and Seminar Certificates.
- 97 Ways To Recognize Alzheimer’s and dementia Staff Education Week
- 20 Reasons Why You Should Provide Comprehensive Alzheimer’s and Dementia Training to Your Staff by A Live Instructor
- Dementia Word Search Games & Interactive Exercises
- Movies and Books About Alzheimer’s You Don’t Want To Miss
- Proclamation & Sample Agenda for Opening Ceremony & Sample Letter to Editor
- Contest Entry Forms- Staff Education week
- Alzheimer’s Bill of Rights & Alzheimer’s Patient Prayer
- Nurse Educator / In-service Director of The Year Nomination F
In addition to facilitating the Train the Trainer programs, The NCCDP promotes dementia education and certification of all staff as Certified Dementia Practitioners (CDP®).
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Incontinence: Why You Shouldn’t Be Embarrassed
Incontinence: Why You Shouldn’t Be Embarrassed:
It’s a topic most people don’t want to talk about, but it’s too important to avoid: incontinence. As we continue to educate our readers throughout Alzheimer's Awareness Month, it's important to shed light on the tie between dementia and incontinence.
Unfortunately, many people faced with worsening dementia are dealt a second, unexpected blow when incontinence begins to happen regularly. It may be an uncomfortable topic, but it’s incredibly common; as dementia progresses, incontinence becomes almost inevitable, according to a 2006 study. Another reason to deal with this care issue head-on is that it is the most common reason a person with dementia is institutionalized.
>>>>
It is also a reason many must stop attending Day Care
DLMifm
It’s a topic most people don’t want to talk about, but it’s too important to avoid: incontinence. As we continue to educate our readers throughout Alzheimer's Awareness Month, it's important to shed light on the tie between dementia and incontinence.
Unfortunately, many people faced with worsening dementia are dealt a second, unexpected blow when incontinence begins to happen regularly. It may be an uncomfortable topic, but it’s incredibly common; as dementia progresses, incontinence becomes almost inevitable, according to a 2006 study. Another reason to deal with this care issue head-on is that it is the most common reason a person with dementia is institutionalized.
>>>>
It is also a reason many must stop attending Day Care
DLMifm
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